"What Services?": Stakeholders' Perceived Unmet Support Needs for Parents With Neurological Disorders.

Evelina Pituch, Rym Ben Lagha,Marjorie Aunos,Tiffanie Cormier,Annie Carrier,Cynthia Gagnon, Véronique Gilbert, Aysha Dominique, Antoine Duquette, Marie Turcotte,Rose-Marie Wakil,Carolina Bottari

Canadian journal of occupational therapy. Revue canadienne d'ergotherapie(2023)

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摘要
Background. Knowledge about the needs of parents with neurological disorders who take care of young children is limited. Purpose. The overall aim of this qualitative study was to explore the perceived unmet parent needs, current supports, and potential solutions to optimize supports of parents with neurological disorders in early childhood in a Canadian setting. Method. Focus groups and individual interviews with parents (n  =  8), spouses (n  =  5), rehabilitation clinicians (n  =  8), community partners (n  =  7), and researchers (n  =  7) were conducted with a total of 35 participants recruited using convenience sampling. Inductive iterative thematic analysis was performed. Findings. The participants identified the need for society to officially recognize parenting with disabilities, adjust public policies, increase the scope of public programs, consider child development and family well-being, and have barrier-free communities. Conclusion. Providing customized solutions that will adequately fill perceived service gaps is of utmost importance to address these families' needs.
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