"You're the only thing he comes out [of his room] for": A qualitative study of engagement between Laughter Care Specialists and families of people with dementia in long-term care

Michelle Digiacomo, Sara-Jane Roberts,Tim Luckett, David Symons, Georgia Ellis,Slavica Kochovska, Tony Warner,David C. Currow,Deborah Parker, Karey Payne,Meera R. Agar

PALLIATIVE & SUPPORTIVE CARE(2024)

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摘要
Objectives Family involvement in the lives of people who have dementia and live in long-term care is important, but family members may face challenges communicating and connecting with their loved one as dementia progresses. A type of therapeutic humor (Laughter Care) delivered by trained specialists aims to engage people with dementia who reside in long-term care through creative play and laughter. This study aimed to explore the perceptions of Laughter Care Specialists (LCSs) regarding families' engagement with the program.Methods Semi-structured interviews were conducted with LCSs (n = 8) and analyzed inductively using thematic analysis.Results Family members were reported to initially have varied degrees of openness toward Laughter Care, but often become more accepting after observing positive engagement with the person with dementia. Family members were perceived to benefit from the program through witnessing the person with dementia enjoy joyous and light interactions, learn new ways of communicating and connecting with the person with dementia, and engage in positive interactions at end of life.Significance of results Laughter Care may provide family members with novel ways of communicating and connecting with people who have dementia at end of life as well as comfort into bereavement.
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关键词
Dementia,long-term care,family carer,person-centered,palliative care
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