Title: A Registry of Patients with Primary Immunodeficiency Diseases

msra

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摘要
The United States Immunodeficiency Network (USIDNET) is a NIH-funded consortium of investigators of primary immunodeficiency diseases (PIDD). The consortium has established 6 Committees to organize, manage, and accomplish the overall aims and goals of the consortium. The Committees are: Senior Advisory, Advisory, Steering, Education/Mentoring, Repository, and Registry. This protocol is for the establishment of Children's Hospital Boston as a participating center for the collection and submission of clinical and demographic data on our PIDD patients to the USIDNET Registry. Funding Sources: USIDNET (NIH-funded consortium)
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