Videobooking: A Person-Centred Record Of Living With Chronic Conditions And Associated Disabilities

People with complex chronic conditions must learn to live with the disabilities and challenges that come with those conditions on a continuous basis. MyHealthMyRecord (MHMR) was designed to allow people to record video vignettes of enabling and/or disabling situations, opinions, musings, and other thoughts regarding their attempts to cope with, manage or work around those situations. One person living with a sudden onset chronic condition used MHMR to document their journey. Main findings were that vignettes were short duration, less than 1 min, and covered a range of topics regarding pain, accessibility and barriers, emotional reactions, systemic issues and recommendations, and MHMR improvements.