Development And Pilot Of Brief Surveys To Evaluate The Quality Of Patient-Centered Cancer Care.

JOURNAL OF CLINICAL ONCOLOGY(2017)

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202Background: Oncology practices have increasingly engaged in patient-centered systematic quality improvement efforts. One test of their effectiveness is patient feedback, yet many existing instruments are unwieldy or insensitive to change. Here we describe the development and pilot testing of short patient surveys used to assess change in patient experience of the key domains of access, communication, and coordination. Methods: Domains and corresponding questions of patient-centered care were informed by existing literature and tools available online, with a focus on domains relevant to cancer patients. Questions were modified from validated or semi-validated instruments to have a consistent 4 or 5-category Likert response scale, put into four unique short instruments that included at most ten questions each and piloted in cancer clinic waiting rooms. Input from patients was sought to assess: 1) relevance and clarity of questions; 2) whether important concepts were missing; 3) acceptability to patients ...
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