Development and preliminary validation of the challenges of living with cystic fibrosis (CLCF) questionnaire: a 46-item measure of treatment burden for parent/carers of children with CF.
Psychology & health（2022）
摘要
The CLCF, developed in partnership with parents/caregivers and CF professionals, is a timely, disease-specific burden measure for clinical research.
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关键词
2226,caregivers,children,cystic fibrosis,measure development,treatment burden,treatments
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