PCR11 Understanding the Patient Experience of Erythropoietic Protoporphyria and X-Linked Protoporphyria: A Qualitative Study

D Whalley, K Belongie, T Frangiosa, H Krasa,DM Mladsi, J Twiss,S Wolowacz

VALUE IN HEALTH(2022)

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关键词
erythropoietic protoporphyria,patient experience,x-linked
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