Whole-body MRI for cancer surveillance in ataxia-telangiectasia: A qualitative study of the perspectives of people affected by A-T and their families.

Renata Neves, Blanca de Dios Perez, Tierney Tindall, Natasha Schneider Fernandez,Rafal Panek,Sophie Wilne,Mohnish Suri,William Whitehouse,Sumit Jagani,Madhumita Dandapani,Robert A Dineen,Cris Glazebrook

Health expectations : an international journal of public participation in health care and health policy（2023）

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摘要

People with A-T and parents of people with A-T were actively involved in this study by giving their consent to be interviewed. An independent parent representative contributed to the study, supporting the research team in interpreting and commenting on the appropriateness of the language used in this report.

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Public and Patient Involvement and Engagement,cancer predisposition,life-limiting disease,psychosocial impact,qualitative research

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