Development and validation of a measure of adolescent and young adult goal-based quality of life (MAYA-GQOL).

Katie Darabos,Carole A Tucker,Lauren Brumley,Sara King-Dowling, Eliana Butler,Evelyn Stevens, Bridget O'Hagan,Dare Henry-Moss,Janet A Deatrick,Dava Szalda,Lamia P Barakat,Lisa A Schwartz

Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation（2023）

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摘要

The MAYA-GQOL represents an innovative way of measuring QOL among AYA by focusing on the relative importance, attainability, and discrepancy of developmentally appropriate goals. The MAYA-GQOL can identify areas of resilience and competence via assessment of important and attainable goals and can further assess how AYA with chronic illness are functioning relative to peers on goal domains relevant to the AYA developmental period.

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Adolescents,Cancer,Chronic illness,Goals,Quality of life,Young adults

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