A virtual consultation system for very rare tumors in children and adolescents – an initiative of the European Cooperative Study Group in Rare Tumors in Children (EXPeRT)

Dominik T. Schneider,Andrea Ferrari,Daniel Orbach,Calogero Virgone,Yves Reguerre,Jan Godzinski,Ewa Bien,Jelena Roganovic,Nuno Reis Farinha,Tal Ben-Ami,Teresa Stachowicz-Stencel,Tabea Blessing,Antje Redlich,Apostolos Pourtsidis,Kris Ann P. Schultz,Ines B. Brecht,Gianni Bisogno

EJC Paediatric Oncology（2024）

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摘要

•Very rare tumors (VRTs) in childhood and adolescence are orphan diseases.•Pediatric oncologists have limited experience in managing VRTs.•An international virtual consultation system (VCS) has been established for VRTs.•160 VCS consultations for VRTs illustrate the ability to promote quality of care.

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关键词

Childhood cancer,Very rare tumors,Orphan disease,Virtual consultation system,Tumor board

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