"If I have Sjögren's syndrome, I want to know it as early as possible": the perspective of first-degree relatives of patients with Sjögren's syndrome from an international survey

Alessia Alunno,Francesco Carubbi,Valentin Ritschl,Divi Cornec,Sabine Zenz,Ana Vieira, Katy Antonopoulou,Loukas Chatzis,Vasco C. Romão,Athanasios Tzioufas,Matilde Bandeira,Martin H Stradner

Joint Bone Spine（2024）

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摘要

•First degree relatives (FDRs) of patients with Sjögren’s syndrome (SS) are keen on being involved in pre-clinical research studies•Absence of SS symptoms and economic concerns are the main barriers preventing SS FDRs to engage in preclinical research•Preclinical research in SS seems feasible and well accepted by target individuals

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Sjögren’s syndrome,first-degree relatives,early diagnosis,autoimmune disease,survey

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"If I have Sjögren&#x27;s syndrome, I want to know it as early as possible": the perspective of first-degree relatives of patients with Sjögren's syndrome from an international survey

"If I have Sjögren's syndrome, I want to know it as early as possible": the perspective of first-degree relatives of patients with Sjögren's syndrome from an international survey