'Maybe it would be better if you spoke to my mother?' - genetic counseling and personal experience.

Patient Education and Counseling（2010）

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摘要

This is the narratives of a family physician and a teacher of Medical Ethics, who herself suffers from Gaucher's disease. She was asked by a colleague to give an advice to a couple trying to decide whether to terminate a pregnancy of a fetus “like her”.

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关键词

Physician narrative,Genetic consultation,Ethics,Gaucher's disease,Termination of pregnancy,Doctor–patient communication,Reflective practice,Difficult conversations

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