Pilot study to evaluate a novel advance-care planning tool to identify informed health care proxies in an oncology palliative care clinic.

Journal of Clinical Oncology(2014)

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摘要
136 Background: To increase the probability that cancer patients receive care consistent with their wishes, medical providers require simple, practical, and effective communication tools to initiate and complete meaningful advance care planning (ACP) discussions. Ideally, ACP discussions occur in the non-emergent setting with a selected health care proxy and trusted medical provider and may lead to completion of an advance directive (AD). The primary aim of this study is to determine the proportion of advanced cancer patients who identify an informed health care proxy implementing a novel ACP tool.In an American Cancer Society funded pilot study, advanced cancer patients were evaluated in an academic oncology palliative care clinic (n=35). Subjects engaged in a 1-hour ACP intervention completed by a licensed clinical social worker utilizing a novel ACP tool developed by the investigators. The ACP tool identifies a health care proxy and defines three key elements an informed health care proxy must know. Details of this ACP conversation were documented in the electronic medical record with the goal of completing an AD. After subject's death, health care proxies were contacted to determine if end-of-life wishes were honored.35 subjects (51% woman, 71% Caucasian, 54% married) were enrolled with a mean age ± SD of 57.4 ± 14.1 years with gastrointestinal as the most common primary cancer (13/35). The ACP intervention was completed in 80% in 1-2 clinic visits. After the ACP intervention, 94% of subjects (33/35) identified an informed health care proxy. The most common identified health care proxies were either a spouse (17/35) or child (11/35). 43% of subjects (15/35) completed an AD after the ACP intervention. As of July 2014, 69% (24/35) of subjects had died and 71% of these (17/24) died in a setting consistent with their end-of-life wishes. Mean time to death from ACP intervention was 4.5 ± 3.2 months. 11 subjects remain in surveillance.Results suggest that this novel ACP tool facilitates successful identification of an informed health care proxy. Despite low AD completion, death consistent with end-of-life wishes was achieved in the majority of patients.
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