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The Measurement of Physical Functioning among Patients with Tenosynovial Giant Cell Tumor (TGCT) Using the Patient-Reported Outcomes Measurement Information System (PROMIS).

Journal of patient-reported outcomes(2019)

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摘要
Tenosynovial giant cell tumor (TGCT), a rare, locally aggressive neoplasm of the synovium of joints and tendon sheaths, is associated with joint destruction, pain and swelling. Impacts on physical function (PF) vary depending on tumor size and location. The aim of this study was to identify relevant items, and demonstrate the content validity of custom measures of lower extremity PF from the Patient-Reported Outcomes Measurement Information System Physical Function Physical Function (PROMIS-PF) item bank among patients with TGCT.
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关键词
Qualitative,Item response theory,Physical functioning,Rare disease,TGCT,PROMIS
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