Association of Child Neurology-Indian Epilepsy Society Consensus Document on Parental Counseling of Children with Epilepsy

Kavita Srivastava,Rachna Sehgal,Ramesh Konanki, Ridhimaa Jain,Suvasini Sharma,Rekha Mittal, Anaita Hedge,Anju Aggarwal, Arijit Chattopadhyay,Bijoy Patra,Jaya Shankar Kaushik, Lokesh Lingappa,Naveen Sankhyan, Puja Kapoor,Pratibha Singhi,Satinder Aneja,Sheffali Gulati,Sujata Kanhere, Surekha Rajadhyakshya,Veena Kalra, Vineet Bhushan Gupta,Vrajesh Udani,Yeeshu Sudan,Man Mohan Mehendiratta,Manjari Tripathi, GT Subhash,Bhavneet Bharti, Srinivas Rao, Munawwar Naseem, Snehashish Mukherjee, Priya Jain, Mehreen Khosla, Kavita Shanbagh, Deepa Jain, Sumeet Mansingh, Dhaneshwar Yadav, Chetan Singh, Sunita Raina, Sapna Srivastava,Leena Ahuja, Rashmi Kumar, K P Vinayan, Rakesh Jain,Satish Jain,Devendra Mishra

The Indian Journal of Pediatrics(2019)

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摘要
When a child is diagnosed with epilepsy, counseling regarding the same is done by the treating doctor. Most parents are frightened and have poor knowledge about epilepsy. Therapeutic advice including drug dosage, administration and side effects takes up the major part of physician’s time, thereby neglecting important issues like home seizure management, follow up and others. These lacunae in knowledge require systematic patient and family education. To address these issues, an expert group meeting of pediatric neurologists and epileptologists in India along with social workers/epilepsy educators, legal experts, parents, and teachers was held. The various aspects regarding parental counseling in children with epilepsy were discussed and a consensus document was formulated. Here authors present the group consensus statement on counseling parents and caregivers of children with epilepsy. This document is intended to help physicians and pediatricians counsel the families when a child is diagnosed with epilepsy.
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关键词
Families, Activity restriction, Schooling
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