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A questionnaire-based survey to evaluate and improve the current HHT medical and social condition in Japan.

Surgical neurology international(2020)

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摘要
HHT medical practice in Japan should be further modified, for example, by establishing HHT centers and educating primary care physicians and HHT patients.
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关键词
Epistaxis,Hereditary hemorrhagic telangiectasia,Osler–Weber–Rendu disease,Quality of life
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