The Lived Experience and Legacy of Pragmatics for Deaf and Hard of Hearing Children.

Alys Young,Amy Szarkowski,Emma Ferguson-Coleman, Darlene Freeman, Candace Lindow-Davies, Ron Davies,Karen Hopkins,Ian Noon,Katherine Rogers,Jane Russell, Leeanne Seaver, Kathy Vesey

Pediatrics(2020)

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摘要
In this article, we discuss deaf and hard of hearing (DHH) children's pragmatic difficulties and strengths from within the lived experiences of 5 hearing parents of DHH children and 5 DHH adults (one of whom is also a parent of a deaf child). We define lived experience as both a specific form of knowledge (first-hand stories from everyday life) and a unique way of knowing (reflecting and telling from insider perspectives). The parents and DHH adults involved coauthored the article alongside 2 experienced researcher-practitioners. Key themes include what pragmatic challenges feel like for a DHH person, why they arise, how they might result in longer-term consequences (such as implications for well-being) that can continue into adulthood, what might be pragmatic strengths in this population, and what might be done to ameliorate pragmatic difficulties. We end the article with reflections on the significance of individual parents and DHH adults in the coproduction and execution of research on this topic and make suggestions for future directions of inquiry.
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