The National Institutes Of Health Covid-19 Neurodatabank And Neurobiobank: A National Resource For Learning, Discovery, And Progress

FRONTIERS IN NEUROLOGY(2021)

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摘要
Patients suffering from COVID-19 experience a wide range of symptoms and sequelae, including increasingly recognized neurological problems. A concerted effort is necessary to identify and characterize these issues, whether newly appearing as a result of COVID-19 disease or exacerbations of underlying conditions. A national resource to collect information and/or biospecimens regarding neurological complications of COVID-19 offers an opportunity for broad representation, harmonization, and rapid learning, all while ensuring robust protection of confidential information through the use of global unique identifiers to protect patient privacy.
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关键词
COVID-19, registry, neurology, epidemiology, patient privacy, rare conditions
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