What to Expect When You are No Longer Expecting - Information Needs of Women who Experienced a Miscarriage.

Even though miscarriages are a common experience, there remains a discrepancy between the information needed after a pregnancy is lost and the information received. We explored the reasons for this gap as part of an eight-week online study with 42 participants who experienced a miscarriage. Common online sources of information were forums, blogs, and Facebook. Participants were interested in general information about miscarriage, counselling resources, others' experiences, and information from health care providers. Barriers to information access were both external (e.g., difficulty locating resources) and internal (e.g., self-blame or stigma). We map these information needs and barriers to a generalized miscarriage timeline crafted from participants' individual experiences and discuss implications for the design of sociotechnical systems to support people through miscarriage and beyond.