Locality Approval Barriers To Research In New Zealand: A Plea For A Streamlined Approach

Background: Neurofibromatosis Type 1 (NF1) is an autosomal dominant condition which occurs in 1:3000 live births. In their lifetime, it is estimated that 5-7% of patients with NF1 will develop a pheochromocytoma/paraganglioma (PCC/PGL). While typically associated with hypertension, these rare tumours can present with orthostatic or paroxysmal hypotension. We report a case of possible biochemically detected PCC/PGL in a patient with NF1 with recurrent orthostatic hypotension following spinal surgery.