CROYDON NEUROLOGY AUDIT OF THE SITE OF DEATH OF PATIENTS WITH MOTOR NEURONE DISEASE

Getting It Right First Time (GIRFT) Neurology recommended in September 2021 to audit the site of death of patients with motor neurone disease (MND) as an indicator for whole-life management.This retrospective audit collected data on patients with MND admitted to Croydon University Hospital during a 2-year period from April 2018. Site of death is currently not recorded so data were obtained from the multi-disciplinary team. As per NICE guidelines, data were extracted on documentation of discussions regarding resuscitation status.Of the 20 patients admitted, 12 died. Compared to national statistics, more patients died at home (42% locally vs 27% nationally), with fewer dying in hospital (17% vs 39% nationally) and similar proportions dying in a hospice (~15%). In 8 of the 17 non-elective admissions, patients had their resuscitation status clearly documented before or during the admission.Patients with MND at Croydon are being managed appropriately compared to national data. Systems like Coordinate My Care enable communication between primary and secondary care settings and should be used consistently. Site of death is to be documented in Model Hospital enabling easier audit of this in the future.