Transition Services for Children and Young Adults with Movement Disorders: A Survey by the MDS Task Force on Pediatrics

Background There is currently very limited data related to transition services for movement disorders. Objectives Movement Disorders Society (MDS) Task Force on Pediatrics conducted a survey of current provision of transition for young adults with movement disorders. Methods The survey questionnaire was based on review of available evidence, with questions designed to capture service location, transition clinic structure, and core issues discussed. The questionnaire was digitalized as an online survey and sent to all members of the MDS. Results Responses were received from a total of 252 MDS members representing 67 countries. Of the responders, 59% confirmed that they provided transition clinics for adolescents with movement disorders. Overall, there was some consensus regarding transition services in terms of patient age at transition, movement disorder etiologies, staffing the service, and medical/social issues discussed. Conclusion This survey provides first-hand data of existing movement disorder transition services and provides useful insights on transition clinics.