Patient values and preferences regarding prognostic counseling in isolated REM sleep behavior disorder.

Thomas R Gossard,Luke N Teigen, Seeley Yoo,Paul C Timm,Jack Jagielski,Noor Bibi,John C Feemster,Tyler Steele,Diego Z Carvalho,Mithri R Junna,Melissa C Lipford, Maja Tippmann Peikert,Laurene LeClair-Visonneau,Stuart J McCarter,Bradley F Boeve,Michael H Silber, Jessica Hirsch,Richard R Sharp,Erik K St Louis

Sleep（2023）

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摘要

Most iRBD patients indicated strong preferences for disclosure of NDD prognostic risk and indicated that prognostic information was important for family discussions and future life planning. Future broader surveys and qualitative studies of clinic-based and ultimately community dwelling iRBD patients' values and preferences are needed to guide appropriately tailored and individualized prognostic counseling approaches following iRBD diagnosis.

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关键词

Mayo Clinic iRBD Patient Registry,Parkinson disease,REM sleep behavior disorder,dementia,dementia with Lewy bodies,multiple system atrophy,neurodegenerative disease,parkinsonism,phenoconversion,prognostic counseling

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