"Finding my way in a maze while the clock is ticking": The daily life challenges of adolescents and young adults with an uncertain or poor cancer prognosis.

Vivian W G Burgers,Martin J van den Bent,Linda Dirven,Roy I Lalisang,Jacqueline M Tromp,Annette Compter,Mathilde Kouwenhoven,Monique E M M Bos,Adrianus de Langen,Milou J P Reuvers,Suzanne A Franssen,Simone A M M Frissen,Niels C G L Harthoorn,Annemiek Dickhout,Marloes J Noordhoek,Winette T A van der Graaf,Olga Husson

Frontiers in oncology（2022）

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摘要

AYAs living with a UPCP experience challenges associated to their sense of altered identity, their position in the social network, and the future uncertainties. This study highlights the importance to recognize and acknowledge the unique challenges of this group. To provide age-specific care, it is important to embed acceptance and commitment therapy and AYA peer support within the healthcare system and other care programs to support AYAs to live well with their disease.

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adolescents and young adults,poor or uncertain cancer prognosis,psychological therapy,psychosocial challenges,qualitative research

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