"You Can't Record That!" Engaging American Indian Traditional Healers in Qualitative Research.

Eliciting the serious illness-related traditions, beliefs, and values of historically and currently marginalized populations such as American Indian/Alaska Natives (AI/ANs) through community-based participatory research (CBPR) is a crucial initial step toward developing culturally responsive interventions. While CBPR is the preferred methodology for research with AI/AN populations, 1 Lucero JE Emerson AD Beurle D Roubideaux Y The holding space: a guide for partners in tribal research. Prog Community Health Partnersh. 2020; 14 (PMID:32280127): 101-107https://doi.org/10.1353/cpr.2020.0012 Crossref PubMed Scopus (7) Google Scholar ,2 Wilson J Thomson C Sabo S Edleman A Kahn-John M Development of an American Indian diabetes education cultural supplement: a qualitative approach. Front Public Health. 2022; 10 (PMID:35211438 PMCID: PMC8860978)790015https://doi.org/10.3389/fpubh.2022.790015 Crossref Scopus (2) Google Scholar it has rarely been used in palliative care (PC) research 3 Isaacson MJ Addressing palliative and end-of-life care needs with Native American elders. Int J Palliat Nurs. 2018; 24 (PMID:29703114): 160-168https://doi.org/10.12968/ijpn.2018.24.4.160 Crossref PubMed Scopus (14) Google Scholar ,4 Isaacson MJ Duran T Johnson G et al. "Calling the Spirit Back:" spiritual needs among great plains American Indians. J Pain Symptom Manage. 2022; 64 (S0885-3924(22)00718-7 Epub ahead of print. PMID:35618248): 268-275https://doi.org/10.1016/j.jpainsymman.2022.05.014 Abstract Full Text Full Text PDF PubMed Scopus (1) Google Scholar specific to AI/AN spirituality. Moreover, few studies regarding AI/AN spirituality have included traditional healers’ voices in the research process 5 Bassett D Tsosie U Nannauck S "Our culture is medicine": perspectives of Native healers on posttrauma recovery among American Indian and Alaska native patients. Perm J. 2012; 16 (WinterPMID:22529755 PMCID: PMC3327107): 19-27https://doi.org/10.7812/tpp/11-123 Crossref PubMed Scopus (0) Google Scholar , 6 Wilson J Sabo S Chief C et al. Diné (Navajo) healer perspectives on commercial tobacco use in ceremonial settings: an oral story project to promote smoke-free life. Am Indian Alsk Native Ment Health Res. 2019; 26 (PMID:30690702): 63-78https://doi.org/10.5820/aian.2601.2019.63 Crossref PubMed Google Scholar , 7 Struthers R Eschiti VS Being healed by an indigenous traditional healer: sacred healing stories of Native Americans. Part II. Complement Ther Clin Pract. 2005; 11 (PMID:16028347): 78-86https://doi.org/10.1016/j.ctnm.2004.05.002 Crossref PubMed Scopus (19) Google Scholar ; none were related to PC.