Building the foundation for a community-generated national research blueprint for inherited bleeding disorders: research priorities to transform the care of people with hemophilia.

Duc Q Tran,Craig C Benson,Judith A Boice,Meera Chitlur,Amy L Dunn,Miguel A Escobar,Kalpna Gupta,Jill M Johnsen,James Jorgenson,Scott D Martin, Suzanne Martin,Shannon L Meeks, Alfredo A Narvaez,Doris V Quon,Mark T Reding,Ulrike M Reiss, Brittany Savage,Kim Schafer,Bruno Steiner,Courtney Thornburg,Lena M Volland,Annette von Drygalski

Expert review of hematology（2023）

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摘要

Collaborative research and care delivery will be key to capitalizing on current and horizon treatments and harnessing technical advances to improve diagnostics and testing, to advance health equity for all PWH.

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关键词

Community,National Hemophilia Foundation,hemophilia,inherited bleeding disorders,patient-centered,research

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