Cross-sectional quantitative validation of the paediatric Localized Scleroderma Quality of Life Instrument (LoSQI): A disease-specific patient-reported outcome measure.

C K Zigler,L Lin,K Ardalan,H Jacobe, S Lane,S C Li, N J C Luca, V H Prajapati, K Schollaert, N Teske, K Torok

Journal of the European Academy of Dermatology and Venereology : JEADV（2023）

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摘要

Results from a representative sample of children and adolescents with LS continue to support the validity of the LoSQI when used in a clinical setting. Future work to evaluate the responsiveness is ongoing.

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paediatric localized scleroderma quality,life instrument

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