Committing to genomic answers for all kids: Evaluating inequity in genomic research enrollment
Genetics in Medicine(2023)
摘要
Our findings illustrate inequity in enrollment related to both GA4K study design and structural inequalities, which we suspect may exist for similar US-based studies. Our methods provide a scalable framework for continually evaluating and improving study design to ensure equitable participation in and benefits from genomic research and medicine. The use of high-resolution, place-based data represents a novel and practical means of identifying and characterizing inequities and targeting community engagement.
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关键词
Biomedical research,Electronic health records,Genomics,Health equity,Informatics
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