Systematic Review of Instruments Assessing Psychosocial Adaptation and Outcomes Among Families of Children With Congenital Heart Disease.

Karen J Eagleson,Desiree McCombs,Tiffany M Gerlich,Robert N Justo,Nadine A Kasparian,Samudragupta Bora

Journal of pediatric psychology（2023）

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摘要

Studies vary widely in instruments used to assess psychosocial adaptation and outcomes among families of children with CHD. Instrument selection informed by robust key psychometrics, increased psychometric reporting, development of both a "toolkit" approach and a comprehensive CHD-specific family instrument are among key recommendations.

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congenital heart disease, family, high-risk infant, neurodevelopment, psychological functioning, quality of life

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