Innovating for a Just and Equitable Future in Genomic and Precision Medicine Research.

Click to increase image sizeClick to decrease image sizeThis article refers to:Rare Disease, Advocacy and Justice: Intersecting Disparities in Research and Clinical CareThe Promise and Reality of Public Engagement in the Governance of Human Genome Editing ResearchIs It Just for a Screening Program to Give People All the Information They Want?Bounded Justice, Inclusion, and the Hyper/Invisibility of Race in Precision MedicineEthical, Legal, and Social Implications of Genomics Research: Implications for Building a More Racially Diverse Bioethics WorkforceThe Other Side of the Self-Advocacy Coin: How For-Profit Companies Can Divert the Path to Justice in Rare DiseasePromoting Equality in the Governance of Heritable Human Genome Editing through Ubuntu: Reflecting on a South African Public Engagement StudyNarrative Equity in Genomic Screening at the Population LevelCritiquing the Critique of Advocacy ACKNOWLEDGEMENTSThis special issue would not be possible without the support of the National Human Genome Research Institute and its support of the biennial ELSI Congress (Grant number U13HG010830) and the Center for ELSI Resources and Analysis (Grant number U24 HG010733). We are grateful to Editor-in-Chief, David Magnus, Executive Managing Editor Bela Fishbeyn, and the publishers of the American Journal of Bioethics, Rachel H. Lee, and several anonymous reviewers for the opportunity to present this research to the community. We hope the conclusions presented in this issue will stimulate both scholarship and action.DISCLOSURE STATEMENTThe authors declare financial support from the National Human Genome Research Institute.Additional informationFundingThis work was supported by the National Human Genome Research Institute under Grant number [U13HG010830] and Grant number [U24 HG010733].