A discrete choice experiment (dce) to quantify the influence of trial features on the decision to participate in cystic fibrosis (cf) trials

THORAX(2022)

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摘要
•It is vital to incorporate patient views into trial design.•We used complex experimental design to find out what pwCF value most when deciding whether to take part in trials.•Location of trial and distance travelled to site were the most important attributes when deciding whether to participate.•Post-trial medicine access, type of medicine, stipend provision and washouts were moderately influential.•Trial design had minimal influence and pwCF do not seem to find placebo-controlled trials off putting.
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关键词
Cystic Fibrosis,Clinical Trials,Patient Preferences,Patient Experience,Patient-centred
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