Multidisciplinary Neurofibromatosis Type 2 Clinic: The Mayo Clinic Experience

Background: Neurofibromatosis Type 2 (NF2) is a debilitating neurocutaneous disorder with a prevalence of 1 in 80,000 worldwide with ~5,000 patients affected in the United States. Patients present with multiple schwannomas, meningiomas, and ependymomas affecting the entirety of the neuro-axis. The care of these patients, by necessity, is complex and requires multiple specialties to work together in a coordinated fashion. As a result, it can be challenging for patients to obtain comprehensive care in a single center, which can lead to delayed treatment and increased neurologic morbidity. There are 83 centers in 34 states recognized by the NF network.