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P312 Provider perspectives and practices related to sexual and reproductive care provision for males with cystic fibrosis

Journal of Cystic Fibrosis(2023)

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摘要
To investigate the perspectives of multidisciplinary CF providers related to sexual and reproductive health (SRH) for males with CF (MwCF). We surveyed multidisciplinary providers exploring attitudes, practices, and preferences toward male CF SRH care. We compared responses across groups by population served (pediatric vs. adult vs. both pediatric and adult MwCF) using chi square/Fisher’s exact tests. A total of 297 providers completed the survey (41% pediatric, 36% adult, 23% both; 27% physicians, 24% social workers, 11% nurses, 41% other). Nearly all (98%) believed the CF team had a role in SRH care with 75% believing they should be primarily responsible. Pediatric providers were less likely to deem SRH topics important and less likely to report annual discussions compared to adult colleagues (all p < 0.05). Pediatric providers were also significantly less likely to know which SRH questions to ask (30% pediatric vs. 49% adult vs. 35% both; p = 0.016) and how to respond to SRH concerns (51% vs. 76% vs. 58%; p < 0.001). Pediatric providers reported less comfort in their SRH knowledge (27% vs. 52% vs. 39%; p < 0.001), availability of SRH resources (25% vs. 44% vs. 29%; p = 0.007), and ability to provide SRH care (screening for hypogonadism, sexual functioning, STIs, and counseling around fertility, contraception, and family-building; all p < 0.05). Common barriers endorsed by all respondents included lack of SRH knowledge (75%) and presence of family/partners in exam room (64%). A majority rated SRH screening tools (91%), partnerships with SRH specialists (90%), clinician training (83%), and management algorithms (83%) as potential facilitators. Multidisciplinary CF providers perceive SRH as important but report suboptimal SRH discussions with MwCF. Pediatric providers report significantly less comfort and skill in discussing and managing male SRH. Identified barriers and facilitators should be used to improve SRH care for MwCF.
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关键词
fibrosis,reproductive care provision
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