EPS1.05 Evaluating impacts of the change from clinic to home spirometry on clinicians and adults with cystic fibrosis

T. Daniels, B. Budden, J. Metcalfe, K. France, K. Hasney, K. Lee, N. Robson, R. Thomas

Journal of Cystic Fibrosis(2021)

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摘要
Background: During the COVID-19 pandemic, people with cystic fibrosis (pwCF) were considered clinically vulnerable & asked to shield. A national scheme supported purchase of spirometers enabling pwCF to do home spirometry to support virtual clinics. PwCFattending the York Hull adult CF centre (YHACFC) were provided with NuvoAir spirometers. Objectives: To evaluate how the change from clinic to home spirometry impacted on the experiences of pwCF & clinicians, focusing on anxiety levels & use of time. Methods: Online questionnaires were sent to pwCF & clinicians at YHACFC. Mock scenarios established potential differences in time taken for home spirometry (HS) & clinic spirometry (CS). Results: 28/70 pwCF & 8/15 clinicians responded. PwCF & clinicians were confident that pwCF could use HS. Frequently used words for both groups were “quick,” “convenient” & “easy” when describing HS. When describing CS, “expertise” & “helpful” featured for pwCF and “time”, “stressful” & “accurate” for clinicians. PwCF reported the main benefit of CS was regular contact with clinicians. 62.5% of clinicians agreed that the change to HS gave better time efficiency & 87.5% agreed clinic flow was more efficient with HS. Timed scenarios indicated 7½ minutes per test saved with HS. Most clinicians believed pwCF are anxious with spirometry, 50% linking anxiety to the clinic setting. Most pwCF reported never being anxious about HS or CS. Only 4% reported anxiety with CS;however, when describing CS, the words “anxious” & “worry” were used frequently. The preference for 82% of pwCF for future care was access to a combination of spirometry in the home & clinic. Conclusion: • Home spirometry saved time for pwCF & clinicians. • Virtual technology has an important & developing role in the care of pwCF but relationships remain valued. • Style of questioning affects response from pwCF about spirometry anxiety. • Disparity between pwCF reported anxiety & clinicians’ perceptions of anxiety needs further investigation.
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