The Utility of Nurse Navigator Delivered Survivorship Transition Visits and Survivorship Care Plans As Perceived By Allogenic Stem Cell Transplant Survivors – a Quality Improvement Initiative

Introduction Stem Cell Transplant (SCT) survivors may experience various long term and late effects. Survivorship Care Plans (SCP) intend to increase survivors’ knowledge and empowerment to navigate the SCT survivorship phase. We sought to understand the utility of a SCT Nurse Navigator (SCTNN) delivered Transition Visit (TV) and SCP for adult allogenic SCT survivors and co-survivors at a single institution. Methods The study was deemed Quality Improvement Project by the UW Madison Institutional Review Board self-assessment tool. Two surveys were developed to assess the utility of TV and SCP for survivors and co-survivors. The TV was conducted as a video visit by SCTNN at approximately 1 year post allogenic SCT. Between 7/1/22 and 6/30/23 the anonymous survey links were sent to 18 survivors and co-survivors by the SCTNN following the TV. Descriptive statistics are used to summarize results. Results We received 11/18 (61%) survey responses from 10 cancer survivors and 1 co-survivor. The age range was 44-81 years old, 5 were female, and all participants were non-Hispanic White. Respondents’ age ranged 44-81 years, 5 were female, 8 had completed at least some college education or more and all were non-Hispanic White. TV improved survivors’ understanding of treatment received (70%), what to expect with future health needs (90%), possible side effects of treatment (90%), and plan for future follow-up (90%). In addition, the TV improved the confidence in the knowledge of symptoms of graft-vs-host disease (GVHD) (90%), who to contact with questions about GVHD (90%), and when the primary care provider should be concerned about GVHD (70%). Regarding SCP, 80% of survivors reported it was easy to understand and use. All survivors reported the SCP helps to understand possible treatment side effects, make better decisions about own health, and communicate with primary care provider about follow-up care. Only 10% felt that some information should be added/removed from the SCP. Conclusions SCTNN delivered TV and SCP were overall perceived as useful by survivors of allogenic SCT. These results will help improve the TV and SCP at our institution as well as expansion of SCP for autologous BMT and CART survivors.