P568: Evaluating Family-Centered Care in Pediatric Orthopedics at BC Children’s Hospital: Parents’/caregivers’ Perspectives
Genetics in Medicine Open(2024)
Abstract
Family-centered care (FCC) is a method of service delivery that emphasizes collaborative caregiving in which families are recognized as the experts on the child’s abilities and needs and therefore work with healthcare providers (HCP) to make informed decisions about the services the child receives. Although FCC is of significant benefit to both children and families, there is often a disconnect between the principles of FCC and the realities of clinical practice. Integration of genetic counselors (GCs) into multidisciplinary clinics is one way in which FCC needs can be addressed.
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