Exploring the Unmet Needs of Young Adults with Stroke in Australia

Research Objectives To explore the unmet needs of young adults aged 18-30 years with stroke and ascertain how best they want those needs met. Design The study employed the qualitative phenomenological research design to understand unmet needs of young stroke survivors. Setting Community. Participants Young stroke survivors (18-30 years), caregivers of young stroke survivors and health care professionals were recruited purposively to participate in in-depth interviews. Interventions N/A. Main Outcome Measures Semi-structured interviews were conducted to ascertain unmet needs of young stroke survivors. Results Sixteen in-depth interviews were conducted, ten with young stroke survivors, three with carers and three with health care professionals. There were nine (56.3%) males and seven (43.8%) females. Six of the young stroke survivors were employed and five were in long term relationships. Themes generated as unmet needs of young stroke survivors focused on; ‘support for recovery’, ‘availability of specific resources’, ‘care continuity’, ‘adjustment’ and ‘Knowledge’. Age specific resources, peer support, provision of psycho-emotional support post stroke and creating awareness in society were reported as the preferred ways of meeting identified unmet needs. Conclusions This study investigates a cohort of young stroke survivors in Australia, to determine the best ways of meeting their ongoing needs. It is evident the needs of young stroke survivors, aged 18-30 years are unique and mostly related to tailored resources for support. It is recommended that health professionals endeavor to provide age specific resources for younger stroke survivors in a bid to improve their quality of life and participation. Author(s) Disclosures None.