Gender and Autism Program: A novel clinical service model for gender-diverse/transgender autistic youth and young adults.

John F Strang,Abigail L Fischbach,Sharanya Rao,Ann Clawson, Megan Knauss, Sarah N Bernstein, Anna I R van der Miesen, Anne P Inge, Kenia Alonzo, Julia Zeroth,Lauren Kenworthy, Colleen I Morgan, Abigail Brandt, Christina C Moore,Kaitlyn Ahlers, Mary K Jankowski,Lucy S McClellan, Shane B Henise, Caitlyn J Cap, Shannon L Exley, Amy Youmatz, Minneh Song,Jennifer L McLaren, Benjamin Parchem

The Clinical neuropsychologist(2024)

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摘要
Objective: Situated in Children's National Hospital (CNH)'s Neuropsychology Division, the Gender and Autism Program (GAP) is the first clinical service dedicated to the needs of autistic gender-diverse/transgender youth. This study describes GAP clinical assessment profiles and presents a multi-perspective programmatic review of GAP evaluation services. Method: Seventy-five consecutive gender- and neuropsychologically-informed GAP evaluations were analyzed, including demographics, gender and autism characterization, and primary domains evaluated. Three program-based Delphi studies were conducted and identify: clinician priorities and challenges in providing care, program administrator lessons learned and ongoing barriers, and considerations adapting this model for a rural academic medical center. Results: Nearly two-thirds of referrals were transfeminine. Most youth had existing autism diagnoses; of those undiagnosed, three-quarters were found to be autistic. Five goals of evaluations were identified: Mental health was always assessed, and most evaluations also assessed gender-related needs in the context of autism neurodiversity. Neuropsychological characterization of strengths and challenges informed personalized accommodations to support youth gender-related self-advocacy. Clinicians emphasized frequent youth safety concerns. Administrators emphasized the need for specialized training for working with families. Components for adaptation of the GAP in a rural academic medical center were identified. Conclusions: Since its founding, the GAP has proven a sustainable neuropsychology-based service with consistent referral flow and insurance authorizations. Capturing staff perspectives through rigorous Delphi methods, and addressing the GAP's feasibility and replicability, this study provides a road map for replicating this service. We also highlight GAP training of specialist clinicians, fundamental to addressing the desperate shortage of providers in this field.
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