Caring for children with cancer evacuated from Ukraine: The patients' perception.

Marcello Bolognese,Maura Massimino, Daniele Cabibbe, Marco Zecca, Marta Fornara, Mariangela Armiraglio, Roman Kyzima,Roberto Luksch,Monica Terenziani,Michela Casanova,Filippo Spreafico,Cristina Meazza,Marta Podda,Veronica Biassoni,Elisabetta Schiavello,Stefano Chiaravalli, Nadia Puma,Shushan Hovsepyan,Luca Bergamaschi,Giovanna Gattuso,Olga Nigro, Paolo Grampa, Annarita Adduci,Andrea Ferrari, Carlo Alfredo Clerici

Pediatric blood & cancer(2024)

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摘要
BACKGROUND AND AIMS:Since the beginning of the war in Ukraine on February 24, 2022, many pediatric oncology centers welcomed evacuated patients. To better understanding the needs of patients and families arriving at two Lombardy hospitals in the period March to November 2022, an anonymous questionnaire investigated the families' backgrounds, feelings, and impressions about hospitality and care. METHODS:Twenty questions investigated how patients had reached Italy, from whom they had received help (logistically/financially); the emotions regarding their status as war refugees; the knowledge, expectations, and opinions about Italy and Italians; the quality of medical care received and the relationships with the healthcare staff; lastly, suggestions to improve assistance. RESULTS:The questionnaires were completed by 19/32 patients/parents in November 2022 in two different pediatric-oncology centers. Most families had reached Italy (58%) and received medical care (95%) with the help of charities and the Italian Public Health Care System. A significant majority (69%) expressed satisfaction with the assistance provided. The Italian population demonstrated remarkable warmth, for 95% exhibiting friendliness and for 58% generosity. An improvement in their stay could be linked with the positive outcome of their children's cancer (15%), achieving complete family reunification (15%), the cessation of the conflict (10%), and the overcoming of language barriers (10%). CONCLUSIONS:Providing care for children from another country, not only grappling with the trauma of fleeing their homeland but also battling cancer, is an immense undertaking. It demands a diverse range of efforts and resources to ensure a positive and fulfilling outcome for this experience.
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