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    Biobanking and Biomolecular Resources Research Infrastructure Consortium

    EST. 2008
    47论文总数
    109引用总数

    论文量&引用量时间轴

    机构学者

    排序
    Michaela Th. Mayrhofer
    Michaela Th. Mayrhofer
    BBMRI-ERIC
    论文:14引用:0H-index:0
    Petr Holub
    Petr Holub
    Faculty of Informatics Botanická 68a, Masaryk University
    论文:11引用:0H-index:0
    Maria Panagiotopoulou
    Maria Panagiotopoulou
    Université de Technologie de, Compiègne, Sorbonne Universités
    论文:8引用:0H-index:0
    Romain David
    Romain David
    Dept Hlth Behav & Soc, Johns Hopkins Bloomberg Sch Publ Hlth
    论文:7引用:0H-index:0
    Maddalena Fratelli
    Maddalena Fratelli
    Department of Biochemistry and Molecular Pharmacology, Istituto di Ricerche Farmacologiche Mario Negri IRCCS
    论文:6引用:0H-index:0
    Carole Goble
    Carole Goble
    School of Computer Science, The University of Manchester
    论文:6引用:0H-index:0
    M. Chiusano
    M. Chiusano
    Department of Soil, Plant, Environmental, and Animal Production Sciences, University of Naples “Federico II
    论文:6引用:0H-index:0
    Helen Parkinson
    Helen Parkinson
    European Molecular Biology Laboratory, European Bioinformatics Institute
    论文:5引用:0H-index:0
    Paolo Romano
    Paolo Romano
    IRCCS Ospedale Policlinico San Martino di Genova
    论文:5引用:0H-index:0

    论文(47)

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    1Umbrella Data Management Plans to Integrate FAIR Data: Lessons from the ISIDORe and BY-COVID Consortia for Pandemic Preparedness
    Romain David,Audrey S. Richard, Claire Connellan,Katharina B. Lauer,Maria Luisa Chiusano,Carole A. Goble,Martin Houde,Isabel Kemmer,Antje Keppler,Philippe Lieutaud,Christian Ohmann,Maria Panagiotopoulou,

    The Horizon Europe project ISIDORe is dedicated to pandemic preparedness and responsiveness research. It brings together 17 research infrastructures (RIs) and networks to provide a broad range of services to infectious disease researchers. An efficient and structured treatment of data is central to ISIDORe’s aim to furnish seamless access to its multidisciplinary catalogue of services, and to ensure that users’ results are treated FAIRly. ISIDORe therefore requires a data management plan (DMP) covering both access management and research outputs, applicable over a broad range of disciplines, and compatible with the constraints and existing practices of its diverse partners. Here, we describe how, to achieve that aim, we undertook an iterative, step-by-step, process to build a community-approved living document, identifying good practices and processes, on the basis of use cases, presented as proof of concepts. International fora such as the RDA and EOSC, and primarily the BY-COVID project, furnished registries, tools and online data platforms, as well as standards, and the support of data scientists. Together, these elements provide a path for building an umbrella, FAIR-compliant DMP, aligned as fully as possible with FAIR principles, which could also be applied as a framework for data management harmonisation in other large-scale, challenge-driven projects. Finally, we discuss how data management and reuse can be further improved through the use of knowledge models when writing DMPs and, how, in the future, an inter-RI network of data stewards could contribute to the establishment of a community of practice, to be integrated subsequently into planned trans-RI competence centres.

    2023Data Sci J(2023)引用:8
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    2Elements of Secure Processing Environments (workshop Report) V1.0
    Irene Schlünder,Michaela Th. Mayrhofer, Erdina Ene
    2023Zenodo (CERN European Organization for Nuclear Research)(2023)引用:1
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    3Sustainability of FAIR Life Science Resources and Projects: Lessons Learned from EOSC-Life Research Infrastructures
    Romain David,Jean‐Marie Burel,Jean-Karim Hèriché,Arina Rybina,Pauline Audergon,Jan‐Willem Boiten,Frederik Coppens,Sara Crockett,Katrina Exter, Sven Fahrener,Maddalena Fratelli,Carole Goble,
    2023Zenodo (CERN European Organization for Nuclear Research)(2023)引用:1
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    4EPND D3.2 Best practices for biobanking
    Maike K. Tauchert, Monica Marchese, EPND WP partners
    2023Zenodo (CERN European Organization for Nuclear Research)(2023)
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    5EOSC-Life Review of Effectiveness and Impact of Outreach and Stakeholder Engagement
    Sara Crockett,Maria Panagiotopoulou, Martina Esdaile,Rebecca Ludwig,Kim Gurwitz,Gary W. Saunders
    2023Zenodo (CERN European Organization for Nuclear Research)(2023)
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    合作机构(100)

    European Clinical Research Infrastructure Network合作论文 13
    法国国家健康与医学研究院合作论文 9
    欧洲生物信息学研究所合作论文 7
    Lygature合作论文 7
    Infrafrontier合作论文 6
    European Research Infrastructure on Highly Pathogenic Agents合作论文 5
    曼彻斯特大学合作论文 4
    柏林夏里特大学医学院合作论文 4
    格拉茨医科大学合作论文 4
    牛津大学合作论文 4

    机构统计