With increasing barriers to conducting transgender health research in the US, recruiting transgender, nonbinary, and gender-expansive (TNGE) people for research studies has grown in complexity and criticality. The purpose of this study was to explore methods used to recruit TNGE adults in qualitative research studies and to identify participant motivations for joining these studies. Researchers used a qualitative descriptive approach to conduct a secondary analysis of qualitative data from two distinct nurse-led studies related to transgender health. Using data from interviews with 59 TNGE participants, a framework for effective recruitment activities was generated, and three themes describing participant motivations for enrolling were developed: (1) benefit to self and others, (2) advocacy for self and others, and (3) support for research and education. Analysis of recruitment methods and outcomes in these qualitative studies may aid researchers in conducting transgender health research in a challenging sociopolitical climate.
The population of transgender and gender diverse (TGD) older adults in the United States may face inequities in the healthcare system due to factors at multiple levels. Research is needed to identify factors that limit and facilitate equitable healthcare delivery for this population. Therefore, researchers conducted a qualitative descriptive study called Shaping Affirming Futures with Elders of all gender experiences (SAFEage) to identify and explore factors that affect health equity for TGD older adults living in the United States. Through purposeful and snowball sampling, researchers enrolled 20 TGD older adults of diverse gender identities and racial and ethnic backgrounds. In Phase 1 of the study, participants discussed their healthcare experiences during semi-structured interviews. In Phase 2, participants reviewed study findings in individual and group sessions. Researchers coded transcripts of interviews and review sessions both deductively and inductively, conducting a thematic analysis informed by the conceptual framework Intersectionality Research for Transgender Health Justice. With participant input, researchers developed six primary themes describing factors that limit (L) and facilitate (F) health equity at (1) structural, (2) systemic, and (3) social levels of influence: (L1) Oppression driving adverse healthcare experiences; (L2) Gaps in healthcare resources and support; (L3) Disadvantages yielding poor health outcomes; (F1) Health justice promoting affirming healthcare experiences; (F2) Catalysts for change in healthcare; and (F3) Assets fostering agency and well-being. Study findings may inform future research, clinical practice changes, and policies that would promote equitable and inclusive healthcare for TGD older adults.
Objectives This scoping review aimed to synthesize research on the health experiences of LGBTQ+ people living with dementia (PLWD) and their caregivers, and the impact of health policies on this population. Methods Six databases were searched for research studies and policy literature. Titles, abstracts, and full texts were reviewed by a three-member team. Data was extracted and thematically analyzed. Feedback from 7 LGBTQ+ adults was collected through a community consultation session. Results A total of 9257 unique research and 945 policy citations were identified, of which 60 research and 19 policy papers were reviewed. Nine research studies and ten policy papers met eligibility criteria. Themes emerged through the analysis of research findings, the community listening session, and policy findings. Discussion Future work needs to disentangle the impact of policies on the health experiences of this population. Dementia-specific and LGBTQ+ inclusive services and policies are needed to address growing health disparities.
As increasing proportions of our global population age, transgender people are experiencing higher rates of dementia, and many are afraid to enter long-term care. Structural interventions such as advance directives may help mitigate fears around entering long-term care by managing specific anxieties that transgender people may have about dementia, loss of decision-making capacity, and discrimination in long-term care settings.
In this manuscript, "Intersectional Structural Stigma, Community Priorities, and Opportunities for Transgender Health Equity," Poteat and Simmons outline the legal and policy barriers that impede efforts to end the HIV epidemic among transgender people in the South. They present qualitative and quantitative data from a community engaged research study conducted with transgender adults and other key stakeholders as well as finding from an analysis of policies impacting transgender people in both states. Violence prevention and decriminalization are highlighted as key policy initiatives that would advance health equity for transgender people.
Abstract Lesbian, gay, bisexual, transgender, queer (LGBTQ+) adults will require inclusive skilled nursing care as they age, but there is a paucity in LGBTQ+ specific training resources for skilled nursing facility (SNF) healthcare workers. Development of community advisory boards is becoming common in research studies as funders place emphasis on stakeholder engagement, but how advisory boards are created with community member involvement at the onset remains less clear. This presentation describes the creation of a community advisory board of LGBTQ+ community members, community organizations, and SNF administrators that work together to develop LGBTQ+ resources for 25 SNFs. Advisory board members were identified using a design thinking framework and the Field Guide to Human-Centered Design. Potential board members were identified through networking with community-based organizations, existing relationships with SNFs, and by word of mouth. The advisory board consists of 3 LGBTQ+ adults, 4 SNF administrators, 1 AARP community outreach and advocacy associate director, 1 advocacy coordinator for LGBTQ+ older adults, 1 SNF physician liaison, and 1 nurse scientist. To gain buy-in, individual interviews and focus groups with potential advisory board members were conducted. Meetings provided an opportunity to describe project goals and how potential member’s expertise would guide development of resources. LGBTQ+ adult community members received compensation for their participation. The advisory board is meeting monthly and approaching the design phase. Community stakeholder involvement in early stages of development will help ensure that LGBTQ+ resources are relevant and applicable to enhance health and well-being of LGBTQ+ older adults in the future.
Transgender youth face health disparities in suicidality, which have been exacerbated by the COVID-19 pandemic. Health care providers should advocate for upstream interventions to reduce suicide disparities, including Medicaid expansion, family acceptance therapy, improved access to name and gender marker changes, continuation of telehealth, and creation of trauma-informed schools.
Our population is rapidly aging and increasingly identifying as transgender or non-binary (TNB). Are our health care and long-term care systems prepared to provide person-centered care to aging TNB people?