People with intellectual disabilities are often excluded from research, in part because they may be perceived as lacking capacity to provide informed consent. A requirement of informed decision making about research participation is ability to understand the study description and disclosures presented during the consent process. The authors' aims were to determine the extent to which study participants with intellectual disabilities were able to answer questions about key aspects of study disclosures, identify ways in which people who provided appropriate answers for all of the questions differed from those who had difficulty with one or more of the questions, and examine patterns of responses to see if certain issues were more difficult to understand than others. The authors piloted a short set of questions to assess the extent to which adults with intellectual disabilities were able to answer questions about key aspects of a health promotion study. More than half of study participants correctly answered all of the questions. For those not able to answer all questions, identifying potential risks of being in the study proved the most challenging. The findings indicate that many people with intellectual disabilities likely can provide their own consent to participate in low risk studies.
La rencontre avec la population d’enfants dysphasiques au sein d’un Centre Référent du Langage a alimenté des questionnements concernant notamment l’articulation avec l’organisation de la personnalité et le projet de soins à proposer.Ce travail de recherche propose d’étudier le fonctionnement psychique d’enfants diagnostiqués dysphasiques âgés entre 6 et 11 ans. L’hypothèse centrale est le caractère transnosographique de ce trouble dans le champ de la psychopathologie infantile malgré les critères d’exclusion établis par les classifications française et internationale.La mise à l’épreuve de notre hypothèse s’appuie sur la complémentarité de trois épreuves projectives : Rorschach, C.A.T/T.A.T et Scéno-test, afin d’éclairer les problématiques et aménagements défensifs de ces jeunes patients en dégageant à la fois les traits communs et les aspects plus singuliers. L’analyse du matériel s’est faite dans la perspective psychodynamique.Au sein de notre population de 23 enfants dysphasiques, nous avons regroupé : 11 enfants relevant d’une organisation limite de l’enfance, 7 enfants du registre de la psychose et 5 enfants du registre de l’organisation névrotique.La diversité des registres de fonctionnement de la personnalité repérée au sein de notre échantillon tend à conforter notre hypothèse sur le caractère transnosographique de la dysphasie dans le champ de la psychopathologie infantile.La clinique projective se révèle précieuse aussi pour ces enfants dysphasiques puisque de ce fait leur prise en charge thérapeutique ne se limite pas à la fonction instrumentale et qu’un soin psychique peut être proposé pour nombre d’entre eux.The encounter with a population of dysphasic children in a Language Impairment Centre has raised questions notably regarding the articulation with the organisation of each personality and the project of care to be proposed.This research work proposed to study the mental functioning of children aged 6 to 11 and diagnosed with dysphasia. The central hypothesis was the transnosographic nature of this disorder in the scope of an infantile psychopathology, despite the exclusion criteria established by the French and international classifications.The testing of our hypothesis was based on the complementary nature of three projective tests: the Rorschach, the CAT/TAT and the Sceno-test, in order to shed light on the problems and defensive adjustment of these young patients by underlining the mutual characteristics and the most uncommon aspects. Analysis of the material was conducted in a psychodynamic perspective.Within our population of 23 dysphasic children, we regrouped: 11 having developed borderline personality traits in childhood, 7 children with psychosis and 5 children presenting neurotic personality traits.The diversity of the functioning personality registers discovered in our sample tends to confirm our hypothesis of the transnosographical nature of dysphasia within the infantile psychopathological field.The projecting clinical picture is precious for these dysphasic children, since their therapeutic management is not only limited to the instrumental function, and mental care can be proposed to many of them.