This study explores factors associated with participation in moderate physical activity and muscle strengthening activity in adults with autism receiving state services (age: 18–78 years). Researchers analyzed the National Core Indicators-In Person Survey (2017–2018) data using multilevel mixed effects logistic regression. Older adults on the autism spectrum engaged in both moderate physical activity and muscle strengthening activity less often than younger adults on the autism spectrum (OR 0.99; p < 0.05; OR 0.98; p < 0.001). Individuals reportedly in fair/poor health had 50

The population aging on the Autism Spectrum (AS) faces disproportionate physical and mental health comorbidities. This research describes self-care practices, including physical activity (PA), nutrition, and spirituality, and the impact of these practices on the health and well-being of older adults on the AS. Researchers conducted semi-structured interviews (N = 30) with older adults (age 50+ years) on the AS on the following topics: health, employment, relationships, and services/supports. Data were analyzed using Dedoose software and a constant comparative method. Participants described self-reported health benefits of their PA. Participants who engaged with organizations reported receiving instrumental support and fulfillment. Several themes emerged regarding socialization and routines in self-care in older adults on the AS, which may inform interventions.

Abstract Adults with Autism Spectrum Disorder (ASD) participate in physical activity (PA) infrequently compared to adults in the general population. This is problematic as individuals with ASD suffer from disproportionate physical and mental health co-morbidities as well as diminished life expectancy, but do not reap the physical and mental health benefits of PA. This study used data from the National Core Indicators-In Person Consumer Survey (n=4,370; age: 18-78) to analyze factors associated with both aerobic PA and muscle strengthening (MS) activity in adults with ASD receiving state Developmental Disability Services. This research used multilevel logistic regression modeling, with mediation and moderation analyses to explore personal and environmental factors associated with PA/MS in this population. Findings indicated the following significant associations between community engagement and PA and MS: community contact (OR=1.17; p<0.001; OR=1.07; p<0.001), community group participation (OR=1.83; p<0.001; OR=1.91; p<0.001), and employment/day program participation (OR=1.32; p<0.05; OR=1.32; p<0.001). Additionally, at older ages, participants were less likely to engage in PA and MS three or more times a week (OR=0.99; p<0.05; OR=0.99; p<0.05). These findings indicate that increasing age is associated with decreased PA and MS activity in this group, while community engagement may facilitate their PA and MS activity. While much remains unknown about the population aging with ASD, it is evident that they suffer from poorer health than the general population and have experienced lifelong difficulties with socialization and communication. Greater access to community engagement opportunities may promote this population’s healthy aging, as well as support their unique social needs.

In the United States, employment experiences of people with intellectual and developmental disabilities (IDD) have been dominated by discrepancies between recent policy shifts promoting integrated employment for people with IDD and the stagnation of the employment rate in integrated settings for this population. Although there is no direct source for labor force participation for individuals with IDD in the general population, data from the National Core Indicators Project suggest that, in 2015-2016, only 19% of working-age adults supported by state IDD agencies worked in one of the three forms of integrated employment-group-supported, individual-supported, or competitive (individualized and without supports). Twelve percent (12%) worked in competitive or individual-supported employment, and 7% worked in group-supported employment (Hiersteiner, Bershadsky, Bonardi, & Butterworth, 2016). In addition, individual employment supports have not been implemented with fidelity to a consistent model or set of expectations, and participation in nonwork services has grown rapidly (Domin & Butterworth, 2013; Migliore et al., 2012; Winsor et al., 2017).

Abstract Social isolation is associated with poor health and well-being in older adults. Little is known about isolation in persons aging on the Autism Spectrum (AS), a group with varied physical and mental health comorbidities. The purpose of this study was to explore social networks of adults aging on the AS. We conducted in-depth interviews (N=30) with adults on the AS (age 50+) and analyzed findings using a constant comparative method. Findings suggest that older adults on the AS struggle to build and maintain social networks over the life course, in large part, because of challenges with communication and trust. Implications of isolation include challenges with community supports and employment. We propose several social convoy models and intervention mechanisms to support this population--as their social networks narrow over time, and they face aging-related challenges without the buffer of strong social relations.

Since the introduction of supported employment in the Developmental Disabilities Act of 1984 and the Rehabilitation Act Amendments of 1986, there has been continued development and refinement of best practices in employment services and supports. Progress includes creative outcomes for individuals with significant support needs including customized jobs and self-employment, community rehabilitation providers that have shifted emphasis to integrated employment, and states that have made a substantial investment in Employment First policy and strategy. Despite these achievements, the promise of integrated employment remains elusive for the majority of individuals with intellectual and developmental disabilities. The number of individuals supported in integrated employment by state agencies has remained stagnant for the past 15 years, participation in nonwork services has grown rapidly, and individual employment supports have not been implemented with fidelity. This article presents preliminary findings from activities completed by the Rehabilitation Research and Training Center on Advancing Employment for Individuals with Intellectual and Developmental Disabilities and discusses a framework for organizing state and federal investments in research, practice, and systems change.

Family care provision is the norm for adults with intellectual and developmental disabilities (I/DD), even as they and their support networks grow older. As families age together, the role of primary carer frequently transitions from the parent to a sibling, as aging parents die or become too frail to provide continued support. The purpose of this paper is to explore the transition in care from the perspective of a sibling who has replaced parents as the primary carer for an individual aging with I/DD. Data are drawn from semi-structured, in-depth interviews with a sample of adults over age 40, living in the United States, and caring for a sibling with I/DD (n=15). Data were analyzed using a constant comparative qualitative approach. Results reveal themes impacting the adjustment to the role of primary carer, the extent to which aging transformed the content of care needs, the importance of planning, and the availability of supplementary support. Findings from this study underscore the need to develop long-term services and supports as well as educational resources that accommodate this population of carers as they age together with their sibling with I/DD.

Misunderstanding and fears about the impact of earnings on benefits represent a significant barrier in the return-to-work efforts of people with disabilities. This pilot project evaluated an approach to spreading a positive message about work and dispelling myths about the effects of work on Social Security benefits through outreach and networking in the disability community. A peer leadership project was developed by enlisting 33 people with disabilities, mainly through disability advocacy organizations, who had experience with disability benefits. They received several days of basic training about work incentives, networking strategies, and community resources that support employment. These peer leaders then developed and pursued outreach plans in their communities.Peer leaders reported making 1046 contacts through their personal networks. One hundred and thirty of the people contacted participated in a survey rating the quality of the interaction and their activities involving employment. The majority of respondents reported they had received helpful information from the peer leaders and had less concern about the negative effects of work on benefits; approximately one-quarter took some steps toward going to work. The evidence from this project suggests that a peer to peer approach may be effective in promoting a positive message about and creating interest in employment.

Using qualitative methods, this study examined the experiences of individuals with intellectual disabilities (IDs) in sheltered workshops and compared them to those in community employment. In particular, the study investigated how employment affects opportunities for the creation of social capital. Primary respondents were individuals with ID and secondary respondents were family members and employment services staff. Findings revealed that a form of social capital was created through workplace connections. Community employment did not increase social capital per se, but it did produce opportunities not available in the workshop. The role of family members emerged as critical in the support of community employment and its potential for social capital development.