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As a measurement scientist with expertise in applied health status measurement, I have led the development of numerous item banks and instruments, intended for both normal and clinical populations including paper-and-pencil and computer administered instruments. I was the principal investigator of the trans-NIH NeuroQoL and the PROMIS Statistical Center. In the first cycle of PROMIS (2004-2009), I was PI of the Statistical Coordinating Center (SCC). Currently I am the MPI of the Environmental Children’s Health Outcomes (ECHO) Consortium PRO Core grant. A theme of my work has been ensuring that the voice of the patient is reflected in clinical care and clinical research, including areas of high-stakes decision-making such as regulatory review, payer negotiations, and individual clinical care. A major focus of many of these initiatives has been ensuring measurement sensitive to diverse populations including issues of health literacy and health disparities and developmentally-sensitive measurement across the lifespan.
研究兴趣
论文共 76 篇作者统计合作学者相似作者
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Psychological assessmentno. 10 (2023): 888-894
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LEUKEMIA & LYMPHOMAno. 7 (2023): 1275-1284
ANNALS OF BEHAVIORAL MEDICINE (2023): S590-S590
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Carolyn C Foster,Aaron J Kaat,Avani V Shah,Caroline A Hodgson,Lindsey P Hird-McCorry,Angela Janus,Philip Swanson, Liana F Massey, Anna De Sonia,David Cella,Denise M Goodman,Matthew M Davis,
Pediatric pulmonologyno. 12 (2023): 3416-3427
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