R. Portenoy - MJHS Inst Innovat Palliat Care

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242 Palliative care needs in cystic fibrosis: Baseline data from the Improving Life with Cystic Fibrosis Multi-site Implementation Trial for Primary Palliative Care Intervention

S. DiFiglia, A. Georgiopoulos,R. Portenoy, M. Berdella, D. Friedman, C. Kier, R. Linnemann, B. Middour-Oxler, P. Walker, J. Wang, B. Buehler,N. Chaudhary,

Journal of Cystic Fibrosis（2022）

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P246 Improving assessment of palliative care needs among cystic fibrosis children: a Delphi study of the ADAPT-Cystic Fibrosis communication guide

B. Middour-Oxler, L. Dhingra, A. Georgiopoulos, S. DiFiglia,R. Portenoy,N. Chaudhary, R. Linnemann

Journal of Cystic Fibrosis (2022)

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P254 Development of a primary palliative care model that includes a novel approach to address the needs of caregivers of adults with cystic fibrosis - improving life with cystic fibrosis: a primary palliative care partnership

A.M. Georgiopoulos, M. Glajchen, M. Markovitz,R. Portenoy, S. DiFiglia, J. Wang, P. Walker, M. Shiffman,S. Pollinger,B. Middour-Oxler, R.W. Linnemann, C. Kier,

Journal of Cystic Fibrosis（2021）

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219: Improving assessment for CF pediatric palliative care: Initial development of the ADAPT-CF communication guide with children and caregivers

B. Middour-Oxler, L. Dhingra, A. Georgiopoulos, J. Wang, D. Friedman, M. Shiffman,R. Portenoy, S. DiFiglia, F. Fischer, R. Abdullah, M. Berdella,D. Hadjiliadis,

Journal of Cystic Fibrosis（2021）

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223: Development of a CF primary palliative care intervention: Perceptions and preferences of individuals with CF and family caregivers

M. Basile, L. Dhingra, S. DiFiglia,R. Portenoy, J. Wang, P. Walker, M. Shiffman,S. Pollinger, B. Middour-Oxler, M. Markovitz, R. Linnemann, C. Kier,

Journal of Cystic Fibrosis（2021）

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CREATING A CF PRIMARY PALLIATIVE CARE INTERVENTION

L. Dhingra,R. Portenoy,R. Abdullah,M. Basile, M. Berdella, F. Fischer, D. Friedman,D. Hadjiliadis, M. Hardcastle, S. Hicks, C. Kier, R. W. Linnemann,

PEDIATRIC PULMONOLOGY（2020）

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QUALITY IMPROVEMENT TO ENHANCE EARLY ADVANCE CARE PLANNING FOR ADULT CYSTIC FIBROSIS PATIENTS

L. Dhingra,P. Walker,M. Berdella, A. Plachta, W. Kenya,J. Chen, M. Bookbinder, J. Balzano, A. Fresenius, G. Myra, E. Langfelder-Schwind,R. Portenoy

PEDIATRIC PULMONOLOGY（2017）

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AN EARLY INTERVENTION PALLIATIVE CARE MODEL: ADDRESSING THE BURDEN OF ILLNESS AND IMPROVING ACCESS TO SERVICES FOR PATIENTS WITH CYSTIC FIBROSIS

P. Walker,M. Berdella, A. Fresenius, A. Plachta,K. Wilder,J. Chen, M. Bookbinder, M. Glajchen, E. Langfelder-Schwind,R. Portenoy,L. Dhingra

PEDIATRIC PULMONOLOGY（2016）

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IMPLEMENTATION OF A WEB-BASED MONTHLY SCREENING TOOL TO ASCERTAIN BURDEN OF ILLNESS AND IMPROVE ACCESS TO SERVICES FOR PATIENTS WITH CYSTIC FIBROSIS

P. Walker,M. Berdella, A. Fresenius, J. Balzano,J. Chen, E. Langfelder-Schwind,K. Wilder, A. Chu, A. Plachta, M. Glajchen, M. Bookbinder,R. Portenoy,

PEDIATRIC PULMONOLOGY（2015）

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SYMPTOM DISTRESS IN CYSTIC FIBROSIS: BASELINE DATA FROM A SCREENING-AND-EARLY-INTERVENTION MODEL OF PALLIATIVE CARE

J. Balzano,L. Dhingra, A. Fresenius,P. Walker,M. Berdella, D. Dibenedetto, E. Langfelder-Schwind, A. Plachta, M. Glajchen, M. Bookbinder, A. Ebtesam,R. Portenoy

PEDIATRIC PULMONOLOGY（2014）

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