e18512 Background: As the number of people with Acute myeloid leukemia (AML) increases, patients and their care partners will need tailored information to foster informed, empowered, and engaged care. The Patient Empowerment Network launched the [ACT]IVATED AML program in 2023 to promote communication between AML patients and care partners and oncologists, remove barriers to accessing care, and improve health literacy among Black and Latinx populations, who often face challenges when seeking and accessing cancer information. We assessed engagement with the [ACT]IVATED AML program. Methods: The [ACT]IVATED AML program consists of almost 70 individual web pages across four domains: Expert Interview videos (brief >5min responses to a single question by leading cancer oncologists), Patient Resources, Patient Vignettes (first person accounts of their cancer experience), and Activity Guides. Materials are available in English and Spanish. We used a mixed-methods approach to assess engagement. Data came from website analytics and a post-program survey with 20 responses. Results: The [ACT]IVATED AML program has shown exceptional growth in engagement, with a 70% increase in views from Q1 2023 (14,793) to Q4 2024 (25,217). Users were particularly interested in the Expert Interviews, with 4 among the most visited: “What Are Potential Impacts of Artificial Intelligence on AML Patient Care?” “How Bone Marrow Biopsies Impact Acute Myeloid Leukemia Treatment and Care.” “What is the Role of Bone Marrow Biopsies in AML Treatment.” And “Black and Latinx AML Patients: The Impact of Cultural Beliefs.” Users also sought the AML resource guides. The Spanish guide, which was carefully developed using culturally relevant medical language, was downloaded 141 times in 2023 and 482 times in 2024 (a 241% increase). The survey responses indicated strong, positive impact on patient confidence: 80% strongly agreed that the program made them feel more confident and empowered to speak up when they have questions about their care; 80% strongly agreed that the program gave them the knowledge and confidence to play a more active role in treatment decisions; and 65% strongly agreed that the program increased their understanding of cancer or their condition. When asked to explain what they had learned from the program, respondents said they valued the expert tips and the questions they could ask their cancer providers. Sample quotes were: “The tips are great, particularly for seeking second opinions” and “I live for these amazing tips these experts provide. I took the guide and the tip from this program to my doctor for a discussion.” Conclusions: This culturally resonant program successfully reached thousands of viewers and empowered some to engage with their healthcare providers. Such engagement suggests that people are actively seeking information about AML. The findings have implications for AML cancer communication strategies with Black and Latinx populations.
Empowerment has long been understood as a state-driven initiative where citizens receive aid from the government through social assistance or direct subsidies. However, the new administration in Indonesia introduces a paradigm shift—transforming from a charity-based approach to one centered on empowerment, participation, and collaboration. This paper explores this new empowerment paradigm, examines the socio-economic challenges Indonesia faces, and discusses the strategies implemented to promote inclusive and sustainable development in the digital age. The establishment of the Coordinating Ministry for Community Empowerment (Kemenko PM) symbolizes a structural and philosophical transformation, positioning the people as active agents of change rather than passive beneficiaries.
This systematic review discussed adverse drug reaction (ADR) experiences and reporting behaviours among the patients in Nasarawa State, Nigeria, where ADRs have been a significant public health issue because of a poor awareness of pharmacovigilance, coupled with low involvement of patients. The review purported to conduct a synthesis of the evidence on the burden of ADR reporting and patterns, as well as determinants of ADR reporting between 1990 and 2025. Using PRISMA 2020 instructions, a comprehensive search of PubMed, Scopus, Web of Science, Embase, AJOL, Google Scholar, NAFDCA publications, and institutional repositories was conducted for quantitative, qualitative, and mixed-method studies. Eight participants were inclusion-critical. The prevalence of ADR was 26.7 to 54.7, and most of the reactions were reported as dizziness, gastrointestinal, rashes, headaches, allergic, antibiotic, NSAID, herbal, and antimalarial. ADR reporting was also low, even though its prevalence was high (5.3% - 15.9%), with the majority of patients relying on family members, community elders, or traditional healers rather than the health system. Why reporting was hampered by barriers, including lack of awareness (up to 73.1%), low health literacy, fear, stigma, and barriers to access, but some facilitators were positive healthcare communication, pharmacist counselling, family support, and awareness of digital platforms such as the NAFDCA SMS channel. The review finds that ADRs are prevalent but significantly underreported in the state. To enhance pharmacovigilance, improvements in cultural sensitivity in education to patients, ease of digital reporting, counselling under the leadership of the provider, control in the use of OTC medicines, and incorporation of traditional healers in order to improve community-based reporting, as well as heighten medication safety on a state-wide basis, are essential.
Counterterrorism professionals in Indonesia face significant pressures due to the demanding nature of their work. This study was aimed at investigating stressors among Indonesian counterterrorism personnel. A mixed-methods research design was employed in the study. The results demonstrate that counterterrorism professionals, including national intelligence operatives, encounter stress chiefly from role expectations, workload, and insufficient social support. Different demographic groups view certain stressors as the most challenging. Furthermore, statistical evidence indicates that employment in security and national defence, or broader intelligence sectors significantly affects personnel's occupational stress levels. The study may help in developing resilience capacity-building strategies.
