As a relatively new condition, little is understood about the individual's experience of misophonia. Twenty-four semi-structured interviews were carried out with people with self-reported misophonia. Thematic analysis was used to analyse the data and develop inductive themes. Three themes were developed, 'the experience of the response to the trigger (with three subthemes: emotional, physiological, and behavioural)', 'the perceived impact of misophonia (with three subthemes: the impact on self-esteem, relationships and day-to-day life)', and 'Influencing factors (with three subthemes: coping, feeling understood, and exacerbating factors)'. The results give an in-depth understanding of the experience of a misophonic response, the impact on the self and interactions with others, and how they coped. The results suggest targeting the avoidant coping strategies and raising awareness of available treatment and support groups may be helpful for managing misophonia and reducing the negative impact of this condition.

This study aimed to explore how individuals with obesity, who have a positive body image (an accepting and favourable view of the body), maintain this positive image in the face of weight stigma. A qualitative methodology was used to explore the experiences of 16 individuals (11 women; 5 men) using one-to-one semi-structured interviews. Four themes were developed using Thematic Analysis: Experiences of stigma, Self-evaluative cognitive strategies, Social Behavioural strategies and What Helps? Themes included strategies that reflect self-affirmation, defensive self-protection and social support. The results also included strategies not found in previous research, such as confronting the source of the stigmatisation. Moreover, no negative strategies, such as eating or self-harm, were reported. In addition, the participants spoke of the positive effect of social support but did not report seeking this support, which suggests that perceived social support may be more useful than enacted support.

Introduction Previous research has suggested that complications stemming from vaginal mesh can lead to life-changing negative physical consequences including erosion and chronic pain. However, there has been little research on the experiences of women who have had complications. This study was aimed at exploring the individual experiences of women who have had vaginal mesh complications and how this has impacted them. Methods An explorative qualitative design was followed. Eighteen semi-structured interviews were conducted with women who had experienced complications with vaginal mesh due to stress urinary incontinence and pelvic organ prolapse. The mean age was 52 and the mean time since the mesh was fitted was 8 years (6 had since had it removed and a further 6 had had partial removal), and the mean time since first mesh-related symptom was 10 months. Data were analysed using thematic analysis. Results Four main themes were identified: perceived impact of mesh complications, attitudes of medical professionals, social support and positive growth. Results showed that participant experiences of their mesh complication were psychologically traumatic, including feelings of increased anxiety and fears relating to suicidal thoughts. Intimate relationships were also affected, with reduced sexual functioning and intimacy stemming from mesh complications. Negative experiences with medical professionals included feeling dismissed, a lack of recognition of their symptoms, and anger towards the profession. Conclusions The impacts of vaginal mesh complications were found to be wide-reaching and life-changing, affecting numerous aspects of participants’ lives. Greater awareness in this area is needed to provide further support for women experiencing vaginal mesh complications.

[This corrects the article DOI: 10.3389/fnins.2022.900474.].

The rising issue of dependence to prescribed pain medication for patients with chronic pain has been highlighted in the literature; however, there is a dearth of research exploring the patient perspective of this dependence in the United Kingdom (UK). This exploratory qualitative study aimed to investigate experiences of prescribed analgesic dependence in patients with chronic pain in the UK. Semi-structured interviews were conducted with nine UK-based participants (eight females, one male) with a mean age of 44, who experienced chronic pain and identified as dependent to their prescribed pain medication. The interviews were recorded and transcribed verbatim and the data analysed using thematic analysis. Three main themes emerged, including perceptions of dependence, interactions with others, and interactions with medical professionals. The findings revealed how the experiences focused on the participants’ own perception of their dependence, such as its perceived impact on their life and how the dependence began, and the relation of the dependence to their social environment, for example, doctor–patient relations. These findings suggest practical implications for the management of dependence such as, raising awareness of the risks of dependence with these medications in the UK, and stricter observation of those taking the medications to identify dependence issues early. A growing number of people with chronic pain are prescribed analgesics (painkillers) by a medical professional to manage their pain; however, these painkillers are often addictive and can cause dependence for those taking them. Despite the growing number of dependent patients, there is a lack of research into this type of dependence in the United Kingdom (UK). This study aimed to speak to people affected by this dependence and understand their point of view. Nine people were interviewed. The interviews were recorded and transcribed. Their words were analysed using thematic analysis, which helps to find the common themes in experiences. Three themes were developed including: what they thought of their dependence, how they felt their dependence affected their relationships with other people, and how relationships with doctors interplayed with their dependence. Their experiences were mainly negative and suggest improvements could be made in the UK healthcare system to support these individuals and help prevent this type of dependence.

Purpose Functional electrical stimulation (FES) can be effective in assisting physical and psychosocial difficulties experienced by people with spinal cord injury. Perceived benefits and barriers of the current and future use of FES within the wider spinal cord injury community is currently unknown. The main objective of this research was to explore the spinal cord injury community's views of the use of FES to decrease disability in rehabilitation programmes.Materials and methods An online and paper questionnaire was distributed to people with spinal cord injury, health care professionals and researchers working in spinal cord injury settings in the United Kingdom.Results A total of 299 participants completed the survey (152 people with spinal cord injury, 141 health care professionals and 6 researchers). Common views between groups identified were: (1) FES can be beneficial in improving physical and psychosocial aspects and that (2) adequate support and training for FES application was provided to users. Barriers to FES use included a lack of staff time and training, financial cost and availability of the equipment. Sixty three percent of non-users felt they would use FES in the future if they had the opportunity.Conclusions Users' views were important in identifying that FES application can be beneficial for people with spinal cord injury but also has some resourceful barriers. In order to increase use, future research should focus on reducing the cost of FES clinical service and also address implementation of awareness and training programmes within spinal units and community rehabilitation settings.IMPLICATIONS FOR REHABILITATIONUsers of functional electrical stimulation think that it is beneficial for improving physical and psychosocial limitations after spinal cord injuryBarriers to FES use include a lack of staff time and training, financial cost and availability of the equipment have been suggested by people with spinal cord injury and health care professionals Education and implementation programs for health care professionals and people with spinal cord injury are now necessary to increase the awareness about functional electrical stimulation applicationReduction of FES cost could also increase its uptake in spinal cord injury clinical services

Many mobile health (mHealth) application interventions include virtual representations of the self in varying forms, such as agents, or avatars to initiate health behaviour change. This review aimed to determine: (i) which virtual representations are effective in mHealth application interventions, and (ii) whether any studies implemented specific mechanisms (the psychological causes of change) and behaviour change techniques (BCTs) to influence positive behaviour change. Following PRISMA guidelines, a narrative systematic review of empirical studies was conducted from ten different databases (ranging from MEDLINE to Cochrane Library) from inception to December 2021. This included articles reporting a virtual representation of mHealth application intervention, published in English from any time point, which addressed and reported a variety of outcome health behaviours. Information on sample characteristics, study conditions, mechanisms and BCTs, results, and conclusions were extracted. Quality and risk of bias were assessed using the Mixed Methods Appraisal and Cochrane Risk of Bias Tools. Out of the 2,579 original search results, five eligible studies (total participants = 509), with low to moderate quality were included. It was found that customisable virtual representation mHealth interventions were most effective in encouraging behaviour change and app adherence. These interventions included mechanisms such as motivation, feedback, self-image, and BCTs such as goal setting, and self-monitoring. The current evidence suggests that virtual representations in mHealth app interventions may positively influence health behaviour change. However, there is limited evidence available to determine to which these influences are a result of the virtual representations, or the intervention design.

There are many different perspectives for understanding autism. These perspectives may each convey different levels of stigma for autistic individuals. This qualitative study aimed to understand how autistic individuals make sense of their own autism and experience the stigma attached to autism. The study used critical grounded theory tools. Participants discussed autism as central to their identity, and integral to who they are. While participants thought of autism as value neutral, they expressed how society confers negative meanings onto autism, and thus, them. The findings also indicate that different understandings of autism confer different levels of stigma. Participants expressed constant exposure to stigma and managed this stigma in different ways. Such methods included reframing to more positive understandings of autism, the reclamation of language, and using concealment and disclosure strategically. The implications of these findings are discussed further in the article.

AimsThis longitudinal study examined the role of anger, disgust, and anxiety in the experience of misophonia, the quality of life of those with self-reported misophonia in comparison to those without misophonia, and the association of misophonia and quality of life over time.MethodsAn online longitudinal survey was conducted, with misophonia, anger, disgust, anxiety, depression, self-esteem, and quality of life measured at two time points (6-months apart) in two groups of people (those with self-reported misophonia and those without misophonia).ResultsAnger and disgust emerged as the primary predictors of misophonic responses. Anxiety and depression were not significantly associated with misophonia over time. Differences in quality of life were observed between those with and without self-reported misophonia in the current study, with lower scores across the SF-36 domains of role limitations due to emotional problems, energy/fatigue, emotional wellbeing, social functioning, and general health for those with misophonia compared to those without misophonia. Compared with other studies, scores for those with self-reported misophonia were lower than those with long-term physical conditions, similar to those with tinnitus, but higher than those with obsessive compulsive disorder. Misophonia was predictive of quality of life over time but only on two domains: role limitations due to emotional problems (predictors: avoidance, emotional responses, and impact on participation in life) and pain (predictor: impact on participation in life). Depression remained a strong predictor of quality of life over time.ConclusionAnger and disgust are more strongly associated with the experience of misophonia than anxiety. Quality of life in people with self-reported misophonia is lower than in the general population and may be similar to those with tinnitus. Depression, avoiding triggers, the extent of the emotional response, and perceived impact on participation in life are associated with perceptions of lower quality of life over time for people with self-reported misophonia.

Autistic people report greater comfort socialising and easier communication with each other. Despite autism being stereotypically associated with lack of social motivation, an autistic community has been described briefly in the literature but is not well understood. Autistic community connectedness may play a role in promoting wellbeing for autistic people. This qualitative study involved interviewing autistic individuals (N = 20) in-person, via a video-based platform, a text-based platform or over email to investigate autistic community connectedness. Critical grounded theory tools were used to collect and analyse the data. There were three elements of autistic community connectedness: belongingness, social connectedness and political connectedness. Belongingness referred to the sense of similarity that autistic people experienced with each other. Social connectedness referred to specific friendship participants formed with other autistic people. Political connectedness referred to a connectedness to the political or social equality goals of the autistic community. Participants described the benefits of autistic community connectedness as being increased self-esteem, a sense of direction and a sense of community not experienced elsewhere. Lack of connectedness involved ambivalence with an autistic identity and/or feelings of internalised stigma. Experiences of autistic community connectedness may have implications for autistic people's wellbeing, as well as how they cope with minority stress. Lay abstract A sense of being connected to other autistic people has been reported anecdotally. Friendships and connectedness may be important to autistic people and beneficial for their wellbeing. Our research aimed to understand the autistic community by interviewing 20 autistic people about their experiences of being connected to other autistic people. Participants were interviewed in person, over video, using a text-based software to type or over email. Participants detailed three parts of autistic community connectedness: a sense of belonging, social connection with autistic friends and political connectedness. The friendships autistic people had with one another were deemed to be very important to participants because it gave them confidence, provided companionship and made them happy. Some participants did not experience connectedness to the autistic community. These participants also found autism to be less important to their identity and had fewer positive feelings about being autistic. This research is important as it raises awareness that community connectedness is viewed as important to this group. It is possible that community connectedness may help protect the mental health of autistic people when they face stigma or negative life experiences in society.

The aim of the present study was to explore perceptions of the Digital Twin (a three-dimensional digital representation of an anatomical body) on a mobile health application, and the potential mechanisms that are important for behaviour change, with a focus on health and weight management. An explorative and participant-led approach was taken using semi-structured online interviews to explore the experiences of people, in this case non-users and users wanting to independently manage their health. An opportunity sample of forty participants from the United Kingdom (20 who had not used digitally assistive technology and 20 who had) were recruited from social media platforms (22 females and 18 males; mean age was 30). The interviews were transcribed verbatim and analysed using Thematic Analysis. Two main themes were elicited: Initiators of behaviour change (i.e., autonomous choices, social influences, and personalisation) and Barriers to behaviour change (i.e., adverse reactions, weight management norms and negative attitudes). Overall, it was suggested that the Digital Twin should be representative of a user’s personalised health information and BMI. These results can inform an intervention designed to use the Digital Twin to initiate and maintain lifestyle behaviour change. It can also develop our understanding of how such technology can be applied as a tool for health management.

BACKGROUND:Intensive care patient diaries written by staff and/or relatives are widely used in intensive care units (ICUs) across the world. Although the original aim of the diaries was to support patients in their recovery from ICU, a more recent focus of the literature has been the potential benefit of the diaries to the relatives of patients. Meta-analyzes of quantitative studies looking at the impact on the psychological wellbeing of relatives have not consistently found an effect of the diaries, even though qualitative studies suggest that relatives find the diaries to be a useful coping strategy. OBJECTIVES:To evaluate and synthesise qualitative studies looking at the experience of relatives writing in ICU diaries. DESIGN:A systematic review and qualitative synthesis. DATA SOURCES:A structured search using CINAHL, MEDLINE, PsycInfo, Cochrane Central Register of Controlled Trials (CENTRAL), PTSDHubs and Published International Literature Web of Science Conference Proceedings Citation Index - Science and Social Science and Humanities was conducted. REVIEW METHODS:All studies published at any time that included qualitative data (including mixed methods studies) about the perceptions of relatives using ICU patient diaries were included. Themes and narrative statements were extracted from included articles and synthesised. Articles were quality assessed using the Critical Appraisal Skills Programme (CASP) qualitative checklist and Mixed Methods Appraisal Tool (MMAT). RESULTS:Sixteen studies were included in the review, thirteen qualitative and three mixed methods articles. The themes identified were: 1. Coping (subthemes: 1.1. Emotion-Focused Coping and 1.2. Problem-Focused Coping) 2. Connection (subthemes: 2.1 Method of Communication and 2.2 Developing and maintaining relationships) 3. Developing a Narrative (subthemes 3.1 Understanding 3.2 Shaping the story 3.3 Remembering). CONCLUSIONS:Relatives use the diaries in a variety of ways including as a means of coping, a way of staying connected, as a tool to understand and develop a narrative about the experience. These findings link the use of ICU diaries with literature on written emotional exposure, post-traumatic growth and meaning making. The relationship between a relative's use of the ICU diary, coping strategies and/or post-traumatic growth could be a focus for future quantitative trials. PROSPERO protocol number CRD42020165869.

Objective: Most current Misophonia scales are not validated, do not include both emotional and physiological responses to triggers, and/or focus only on auditory triggers. This research aimed to develop and validate a measure of the magnitude of the Misophonic response that addressed these omissions. Method: Three studies were carried out with individuals with self-diagnosed Misophonia. In study 1, expert opinion and participants commented on initial items to determine both face and content validity. In study 2, scale structure, reliability, and convergent and discriminant validity were determined using correlations, principal component analysis (PCA), and reliability analysis. In study 3, factor structure was confirmed in another sample of participants using confirmatory factor analysis (CFA). Results: The final 22-item scale assesses the magnitude of responses to triggers across any sensory modality. There are three subscales (emotional, physiological, and participation in life), with three additional items measuring frequency of triggers, avoidance of triggers, and time taken to recover from the triggers. The final scale showed suitable discriminant and convergent validity, with good internal consistency (Cronbach's alphas range 0.77 to 0.89). The three-component solution extracted using PCA explained 53.97% of variance, with all items loading between 0.45 and 0.84. The structure was confirmed with CFA (chi(2) = 269.01, p < .001; CFI = 0.96; TLI = 0.96 and RMSEA = 0.045 (CI 0.037-0.053). Conclusion: The Misophonia Response Scale, which is valid and reliable, will facilitate understanding of Misophonia as it is short and easy to use for self-report in research.

There is conflicting evidence as to whether Facebook, one of the most popular social networking sites, either promotes social connectedness or contributes to the rising prevalence of loneliness. This study aimed to understand the association between Facebook use and loneliness. Two hundred and fourteen active Facebook users (Mage = 35.65; 80.8% female) completed a cross-sectional questionnaire measuring the nature of their Facebook use, how frequently they ruminate, the tendency to compare themselves to their Facebook friends, and upward and downward social comparison. The results showed that rumination and upward social comparison on Facebook were significantly associated with loneliness. The type of activity users engaged in when using Facebook was not significant. The study therefore demonstrates that Facebook users who ruminate and compare themselves to their perceived superiors on Facebook are more likely to experience loneliness. Suggested solutions include raising awareness and using algorithms on Facebook to deliver targeted interventions.

Social networking activity is becoming more endemic in society and yet little is known about how the social comparison, occurring when we use these sites, affects perceptions of health. This study sought to determine in what way people who use Facebook (FB) interpret the comparison information they see on FB and whether this was associated with perceptions of physical health. Determining this association is important given the positive association between well-being, quality of life and physical health. Using a cross-sectional design, participants completed an electronic questionnaire measuring FB use, FB social comparison, self-esteem, depression, anxiety, life satisfaction and physical health. The data was analysed using Hierarchical Linear Regression to determine the association of social comparison on perceptions of physical health after controlling for other influencing factors. The results showed that participants were indeed socially comparing via FB. More positive upward comparison was reported, followed closely by positive downward and negative upward, with negative downward comparison perceived least. Analysis showed physical symptoms were associated with gender, anxiety, depression, FB use and positively interpreted upward comparison. Those who agreed more with the positively interpreted social comparison statements and who engaged more with FB also perceived more physical symptoms. These results showed that the perception of symptoms still occurred despite the positive comparison. These results have implications for perceptions of well-being for general users of FB and for vulnerable populations where more social comparison may occur.

Posttraumatic growth after a diagnosis of HIV is positively associated with adjustment, yet stigma and disclosure regret are negatively associated with adjustment. Research into whether posttraumatic growth is experienced while perceiving stigma and disclosure regret is still growing. This study aimed to determine whether posttraumatic growth maintains a positive relation with life satisfaction after controlling for disclosure regret and perceived stigma. Using a cross-sectional design, a questionnaire measuring life satisfaction, health status, depression, posttraumatic growth, disease severity, perceived stigma, disclosure regret, and demographical information was completed by 73 people living with HIV (PLWH). Results showed that all participants had disclosed to at least one person. Regression results showed that after controlling for other variables, including stigma and disclosure regret, posttraumatic growth was positively associated with life satisfaction. The importance of the relation of posttraumatic growth with subjective measures of adjustment may be important for interventions aimed at supporting PLWH.

This study aimed to investigate whether special education teachers shared similar difficulties in their understanding of reward and punishment as their mainstream peers. Thirty‐five teachers working in six special education needs schools took part in a mixed methods study to explore their use and understanding of reinforcement principles. The purpose of the mixed methods approach was to triangulate the teachers use and perceived use of different reinforcement strategies within the classroom. Teachers’ had a good grasp of positive reward‐based strategies, but their understanding of the other three types of reinforcement (negative reward, punishment and penalty) was less accurate. There was a clear aversion amongst the sample to discuss punishment with many stating that they do not use it, which contrasted with the observations. Structured continued professional development interventions are required to rectify the discrepancies between belief and evidence.

Background/Aims: This paper illustrates the application of a technique, cognitive interviewing, which was used in the development of three questionnaires to determine the views of use of functional electrical stimulation by people with spinal cord injury, health care professionals and researchers working in spinal cord injury. Methods: Three questionnaires for the three populations were developed in order to explore views about the current and future use of functional electrical stimulation. The questionnaires were reviewed and discussed by the team. Cognitive interviews were carried out at participants' homes, university or workplace and each interview lasted a mean time of 65 minutes. The interviewer used ‘think aloud’ techniques. They were transcribed and analysed using content analysis. Results: Twelve participants (four people with spinal cord injury, four health care professionals and four researchers) from across the United Kingdom took part. The process identified several areas for modification, including clarification of words, format and legibility of questions, changes to sections, and the layout of the questionnaires. Conclusions: Cognitive interviewing ensured that the questionnaires were readable, clear and relevant, unambiguous and related to current clinical practice and research. The technique resulted in good quality questionnaires with enhanced patient-centred language.

Current research surrounding infertility is focused primarily on women alone, thus removing men from the fertility equation. However, alternative research has indicated that, although men also experience infertility, there is a paucity of research on men. Therefore, very little is understood about the experiences of infertility from the male perspective. This study adopted a qualitative approach in an attempt to explore the infertility experience from the perspective of men. Fifteen men who had experienced infertility were interviewed to explore their experiences. Interpretative phenomenological analysis was used to analyse the data. Five superordinate themes were developed, and these included: (1) the influence of society on infertility; (2) feeling unacknowledged; (3) natural verses assisted conception; (4) emotional reactions; and (5) improving the infertility experience. The findings of this research indicated that men experience infertility as a mentally, physically and socially demanding condition. Comparisons to previous research have been made, and future research is proposed.

Background: Social networking activity is growing and yet little is known about how this affects our health perceptions. This study sought to determine in what way people who use Face Book (FB) interpret the information they read and whether this was associated with their psychological and physical health. Methods: Using a cross-sectional design, an electronic questionnaire measured FB use, FB social comparison, self-esteem, depression, anxiety, reported physical symptoms, and life satisfaction. Members of the public (n = 162; age M=31 years; 67% female) were recruited using snowballing via FB. The data was analysed using Hierarchical Multiple Regression. Findings: More upward positive comparison (M=9.09; SD=2.44) was experienced, followed closely by downward positive (M=8.92; SD=2.35), and upward negative (M=8.28; SD=3.14), with downward negative perceived least (M=6.29; SD=2.35). Regression analysis showed life satisfaction (R2=.51) was associated with: downward positive FB information (β=.161*), upward negative (β=-.350***), and downward negative (β=.296 ***). Self-esteem (R2=.62) was associated with upward positive (β=.137*) and downward negative (β=-.130*). Anxiety (R2=.57) was associated with upward negative (β=.314***), depression (R2=.53) with downward negative (β=.188**), and symptoms (R2=.45) were associated with upward positive (β=.227*). Discussion: Negative interpretations were associated with poorer psychological health and positive interpretations with better psychological health. Physical health was positively associated with positive interpretations indicating that upward comparison may be a coping strategy for people with more symptoms. These results have implications for perceptions of well-being for general users of FB and for vulnerable populations, such as those living with chronic illness, where more social comparison may occur.