This paper summarizes the concept, related theories and influencing factors of marital relationship satisfaction, and briefly Outlines the research progress on intervention of marital relationship satisfaction of patients with chronic diseases and their spouses, so as to provide reference for constructing intervention programs of marital relationship satisfaction of patients with chronic diseases and their spouses in Chinese cultural background.
Objective To explore the categories of dyadic depression and related factors among stroke patients and their spouses.Methods A total of 224 dyads of stroke patients and their spouses were recruited in the Neurology Department of a tertiary general hospital from November, 2019 to August, 2020.The general information questionnaire, PHQ-9,PSS,Modified Rankin Scale, C-PTGI and Caregiver Benefit Finding Scale were used for investigation.Latent profile analysis was adopted to explore the categories of dyadic depression, and multiple logistic regression was used to analyze the predictors of each category.Results Categories of dyadic depression among stroke patients and their spouses included patient and spouse with no depression, patient with severe depression-spouse with mild depression, patient with moderate depression-spouse with no depression, patient with mild depression-spouse with moderate depression.Taking the category of patient and spouse with no depression as the reference, the C-PTGI score, poor prognosis, disease duration(≥1 year),monthly household income(< 2,000 yuan),patients’ PSS score, stroke occurrence(≥3),caregiver benefits were predictors(all P<0.05).Conclusions Dyadic depression exists in the populations of stroke patients and their spouses, which demonstrates different categories.Nurses should carry out comprehensive psychological interventions for stroke patients and their spouses with different depressive characteristics, so as to alleviate their depression.
目的 明确风险感知等概念的构成要素,建立慢性病风险感知与行为关系模型,为开展慢性病行为管理提供参考.方法 计算机检索CINHAL、Embase、PsycINFO、PubMed、Scopus共5个数据库,检索时间为自建库至2019年5月,检索词为"risk perception""perceived risk""perception of risk""behavior(u)r"等,采用 NVivo 11.0软件对纳入文献进行质性分析.结果 共纳入176篇文献,提炼出10个一级节点,包括风险、感知、行为、疾病类型、健康促进、情感反应、意向和动机、知识、自我效能及个人环境因素.感知涉及7个概念要素,包括感知风险、感知益处、感知障碍、感知控制性、感知易感性、感知严重性和感知可能性.行为包括行为准备、行为决策、健康行为、筛查行为、自检行为及生活方式,可进一步从行为过程及行为类型两个角度界定概念结构维度.初步建立风险感知与行为关系模型,包括3条核心假设作用路径,情感反应路径、行为意向路径及自我效能路径.结论 慢性病风险感知与行为之间关系较为复杂,主要涉及行为改变早期阶段即准备和决策,与个体情感反应、意向动机和自我效能密切相关,同时受疾病类型、知识及环境等因素影响.
Introduction The global burden caused by stroke is shifting to young and middle-aged people. Researchers have emphasised the significance of benefit finding (BF) in psychological health. However, current research has paid little attention to stroke and has discussed BF from only a single perspective, that is, that of either patients or caregivers. Our study aims to understand the changing trajectory, predictors and dyadic interaction of BF in dyads of patient who had a stroke and caregiver. Methods and analysis This study is a longitudinal mixed-methods, multicentre study. A total of 142 patients who had a stroke and 142 spousal caregivers will be investigated. Participants will be recruited from four large public hospitals in northern China. Quantitative and qualitative data will be collected at five time points (near discharge and 1, 3, 6 and 12 months following discharge). Validated and reliable questionnaires will be used in quantitative studies. Information on sociodemographic data, BF, functional status, perceived stress, coping styles and mutuality will be collected from the dyads. Qualitative data will be collected via semistructured interviews and observations. The growth mixture model will be used to analyse quantitative data, and Colaizzi’s seven-step analysis method will be used to analyse qualitative data. We plan to conduct parallel but separate quantitative and qualitative data analyses and ultimately integrate the data sets to determine confirmation, expansion or discordance. Ethics and dissemination All participants will be provided with an informed consent form. This study will encode all identifiable data and store all recorded data on a secure research server. This study has been approved by the Ethics Review Committee of the College of Nursing and Health, Zhengzhou University (ZZUIRB2020-53). The results of the longitudinal study will be published in peer-reviewed journals and presented at national conferences. Trial registration number ChiCTR2000039509.
Abstract Purpose To translate the MOSE from English to Chinese and investigate the psychometric properties of the Chinese-translated version of the Measure of Stroke Environment (MOSE). Materials and methods The MOSE was translated into Chinese using a cultural adaptation process. To validate this Chinese version, 311 stroke survivors were recruited to complete the questionnaire. The psychometric properties of the MOSE were evaluated by determining item analysis, test–retest reliability, internal consistency, content validity, construct validity, and floor/ceiling effects, respectively. Results The MOSE was translated without any major difficulties. Regarding psychometric performances, a moderate level of correlation between the items and the domains (r > 0.4), and the significant differences in items between the high group and the low group were tested by independent sample t-tests (p < 0.05). The test–retest reliability was excellent (Intraclass Coefficient Correlation = 0.938). Very high internal consistency was also observed (Cronbach’s α = 0.945, split-half reliability = 0.778). An acceptable I-CVI ranged from 0.714 to 1.000 and a high S-CVI of 0.973. Correlations with the subscales of the WHODAS 2.0 were significant in similar domains reflecting good convergent validity. No floor or ceiling effects were observed. Conclusion This study provides psychometric evidence supporting the use of the Chinese version of the MOSE among stroke survivors. IMPLICATIONS FOR REHABILITATION The Measure of Stroke Environment was translated into Chinese through a rigorous cultural adaptation process. MOSE-C is now a reliable and valid tool for Chinese-speaking survivors who have suffered from a stroke. It is necessary to assess the perceived environmental barriers of stroke survivors and develop targeted intervention programs in China.
目的 探讨脑卒中患者抑郁症状的潜在分型并分析不同类别脑卒中患者的特征差异.方法 2019年11月至2020年8月,采用便利抽样法选取郑州市某三级甲等医院神经内科224例脑卒中患者为研究对象,采用一般资料调查表、改良版Rankin量表、病人健康问卷-9、简体中文版创伤后成长评定问卷对其进行调查.采用潜在剖面分析患者抑郁症状的潜在分型,采用多元Logistic回归分析评估各因素对其不同分型的影响.结果 脑卒中患者抑郁症状分为4个类别:情绪抑郁型(9.4%);广泛抑郁型(13.8%);抑郁低风险型(58.0%);躯体-情绪混合抑郁型(18.8%).卒中类型、病程、发病次数、躯体症状数、预后情况和创伤后成长得分是影响脑卒中患者抑郁症状潜在剖面分类的预测因素(均P<0.05).结论 脑卒中患者抑郁症状具有4个潜在类别,医护人员应注重不同患者的抑郁特征,实施有针对性的心理干预,缓解其相关抑郁症状.
The article elaborates on the necessity of dyadic intervention, and reviews the current status of dyadic intervention for stroke patients and their caregivers at home and abroad, with a view to providing a basis for constructing a dyadic intervention program suitable for stroke patients and their caregivers under the cultural background of our country.
介绍脑卒中发病风险感知相关起源与发展,并从社区居民、脑卒中高危人群与脑卒中患者分类介绍脑卒中发病风险感知的评估内容与方式,总结脑卒中发病风险感知影响因素及干预方法,旨在为国内开展相关研究,促进患者健康行为方式形成提供参考.
目的 系统评价脑卒中患者创伤后成长的情况及相关因素.方法 依据Cochrane协作网工作手册,计算机检索中国知网期刊数据库(CNKI)、万方数据知识服务平台(Wan Fang Data)、维普中文科技期刊数据库(VIP)、中国生物医学文献数据库(SinoMed)、百度学术、Cochrane图书馆、JBI循证护理中心图书馆、Web of Science、PubMed、EMbase、CINAHL建库至2020年12月31日的文献.由2名研究员按照纳入和排除标准筛选文献并提取资料,参考美国卫生保健中心的文献质量评价标准进行质量评价,再对纳入的原始研究进行总结分析.结果 共纳入原始研究21篇文献.依据创伤后成长功能描述模型及课题组前期研究成果,将相关因素划分为个体内部因素、个体外部因素进行分类归纳.结论 现有研究结果表明脑卒中患者创伤后成长整体处于中等偏低水平,未来亟需进一步展开理论及纵向研究论证脑卒中患者创伤后成长发生机制,为医护人员制定切实有效的创伤后成长干预提供高质量证据支持.
为了进一步提高居家监护场景下人体动作识别的可靠性与实时性,更好地辅助出院后的卒中患者进行康复训练,提出一种基于单目视觉的在线人体动作识别算法.融合姿态估计OpenPose与最近邻匹配算法对监控视频流中的目标人体生成动作序列.通过滑动窗口选取原始姿态特征并对其预处理转化为鲁棒性特征,输入到多层LSTM长短时记忆网络中进行康复动作识别.实验结果表明,该方法对活动背景、人体穿着、无关人员的干扰等具有较强的适应能力,能够在线识别连续的康复动作且准确率达90.66%,在居家康复训练场景中有一定的应用价值.
ObjectiveTo systematically evaluate the qualitative researches on the needs and emotional experience of young and middle⁃aged stroke patients.It could provide the basis for hospitals,communities and clinical workers to provide better humanized care.MethodsTotally eight databases including Web of Science,EMbase,PubMed,CINAHL,PsycINFO,CNKI,Wanfang,and VIP were searched by computer to collect qualitative researches on the inner needs and real experience of stroke patients in young and middle⁃aged adults.The retrieval time was from database established to December 30,2019.The JBI Critical Appraisal Tool for qualitative studies in Australia was used to evaluate the quality of studies.The searching results were synthesized by using integrating methods.ResultsA total of 16 studies were included,60 specific research results were extracted,similar results were summarized and combined to form 15 new categories,and four integrated results were synthesized,which were negative psychological reactions such as shock and confusion after diagnosis,struggling with uncoordinated environment and cognition in rehabilitation,expectations and frustrations as returning to family and society,reconstruction and predicament of life after recovering gradually.ConclusionsCurrent evidences showed that the physical,psychological and social experience of the young and middle⁃aged stroke patients was different from elderly patients.Medical staff in hospitals,communities and institutions should fully understand and master the characteristics of young and middle⁃aged stroke patients,and provide patients with rehabilitation and nursing programs which were suitable for their age.
The unmet needs perceived by community-dwelling stroke survivors may truly reflect the needs of patients, which is crucial for pleasant emotional experiences and a better quality of life for community-dwelling survivors not living in institutionalized organizations. The purpose of the study is to identify the scope of unmet needs from the perspectives of stroke patients in the community. A qualitative meta-synthesis was performed according to the Joanna Briggs Institute method. Six electronic databases were searched from inception to February 2020. A total of 24 articles were involved, providing data on 378 stroke survivors. Eight categories were derived from 63 findings, and then summarized into four synthesized findings based on the framework of ICF: (1) unmet needs regarding with the disease-related information; (2) unmet physical recovery and activity/participation needs; (3) unmet needs for social environmental resources; (4) unmet psycho-emotional support needs. We found the framework of ICF mostly complete, but unmet information needs still remain. The needs that are mainly unsatisfied include physical, psychosocial and informational, as well as the practical support from professional or environment resources. The ever-present unmet needs perceived by community-dwelling stroke survivors who do not live in institutions are discoverable and mitigable. Future studies should focus on quantifying unmet needs comprehensively derived from experiential domains, assessing the rationality of the unmet needs expressed by patients' perspectives and developing flexible strategies for long-term and changing needs.
This paper introduced the concept,theoretical models and evaluation methods of sedentary behavior,and summarized the influencing factors and intervention strategies of the sedentary behavior in stroke patients,in order to provide a reference for intervention study of sedentary behavior in stroke patients in China.
脑卒中严重威胁全球居民健康,消除或减少环境障碍或可对患者社会参与产生迅速和积极的影响.本文介绍了脑卒中环境和社会参与的相关概念和测评工具,综述了脑卒中环境与社会参与关系的研究进展,发现脑卒中环境与患者社会参与水平密切相关,但二者之间的具体关系仍需进一步探究.未来研究应重视并优化脑卒中环境,以提高社区脑卒中患者社会参与水平,进而促进患者康复.
AIM:The aim of this study is to describe a longitudinal research protocol for exploring the relationship of dyadic appraisal, dyadic coping (DC), and dyadic mental health among stroke survivors and their spouses and its action path.BACKGROUND:Stroke can be considered as a dyad phenomenon which affects the mental health of both the survivors and their spouse caregivers. Studies based on dyadic theories are needed to examine the roles of dyadic appraisal and DC on the mental health of stroke dyads.DESIGN:Longitudinal study.METHODS:Stroke survivors and their spouse caregivers will be recruited from hospital, when the survivors are stable and about to discharge. Follow-up assessments will take place in 3, 6, 9, and 12 months after participants discharge. The structural equation modelling will be used for statistic analysing.DISCUSSION:Our study seeks to expand the theory of Developmental-Contextual Model to examine the association among variables including dyadic appraisal, DC, and mental health for the couples coping with stroke.
目的 综述压力与应对理论的相关概念及理论模型,阐述压力与应对理论在慢性病照顾者干预研究中的应用进展.方法 以“压力与应对”和“照顾者”作为CNKI数据库和万方数据库的检索词,以“stress and coping theory”和“caregiver”作为PubMed和Web of Science数据库的检索词,进行相关文献检索.结果 修订版压力与应对模型强调积极情绪在应激过程中的重要性,基于压力与应对理论的慢性病照顾者干预内容主要包括认知评价、应对技能和社会支持等.结论 修订版压力与应对理论可为今后我国医务人员对慢性病照顾者提供针对性干预提供理论参考.
为深入了解中青年脑卒中患者创伤后成长的真实体验,运用现象学研究方法,选取10例受访者进行深度面对面半结构化访谈,访谈资料采用Colaizzi现象学分析法进行整理分析.提炼主题可归纳为中青年经历脑卒中后的心理痛苦、中青年患者创伤后成长促进因素及中青年患者创伤后成长体验三个部分.中青年脑卒中患者存在创伤后成长这一积极心理体验,为临床心理护理干预提供新的切入点.临床医护人员应关注患者早期创伤反应及压力源,从促进因素入手,激发中青年患者的潜能和力量,充分利用其心理资源以达到身心适宜的状态.
目的 了解河南省农村中年脑卒中患者院外知识 、态度 、行为现状,分析其影响因素,并提出相应对策.方法 采用方便抽样法,从河南省农村地区抽取300例中年脑卒中患者,调查其基本情况,脑卒中疾病相关知识 、态度和行为水平.结果 农村中年脑卒中患者卒中相关知识水平普遍较低,平均得分为(22.22±7.781)分,满分为41分;行为得分为(12.52±4.772)分,满分17分.回归分析显示知识 、态度 、患者疾病治疗态度进入方程.结论 农村中年脑卒中患者脑卒中知识普遍不高,行为依从性较低,或可通过搭建基于网络的视频-动画卒中知识库并纳入出院非硬性指标的途径提高脑卒中患者的知识水平,提供系统网络化行为指导等为农村中年脑卒中患者的主动康复探索新的途径.